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Profile picture for aeiou13 @aeiou13

I was diagnosed with PBC in 2008 and the extreme fatigue is definitely for real! I never know what to expect from one day to the next, regardless of how much restful sleep I’ve had. Then in 2021 I was also diagnosed with hEDS which also has side-effects including extreme/chronic fatigue. I have lots of other things going on, too, so I’ve just had to try to adjust my daily activities and plans to match my level of pain and fatigue. It can be really hard and I fortunately had a friend introduce the idea of “counting spoons” and this has helped me to be more mindful and in tune to how my body feels.
You are definitely not alone, though it can easily feel like it, and I feel it sometimes, too. These chat groups have been really helpful. I hope that I have helped you, at least a little. Keep smiling!

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Replies to "I was diagnosed with PBC in 2008 and the extreme fatigue is definitely for real! I..."

@aeiou13 - will you share more about the idea your friend shared with you about "counting spoons"?