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Poly Autonomic Idiopathic Neuropathy (PAIN)
Neuropathy | Last Active: Nov 2 8:37am | Replies (10)Comment receiving replies
@okaynowwhat
Are you male or female and how old are you? Have you had your thyroid checked and iron levels? Have you been tested by a neurologist for small fiber neuropathy skin punch biopsy?
How are your oxygen levels? Have you had a gastroenterologist do an endoscopy? Have you had your hormones tested levels checked?
Did you ever have COVD and the shots? This could be behind some of your symptoms. Have you been tested by an immunologist for long Covid?
Replies to "@okaynowwhat Are you male or female and how old are you? Have you had your thyroid..."
@dlydailyhope
I was diagnosed from a punch biopsy done by the Cleveland Clinic on my eg with showed I have SFN, EMG showed I do not have large fiber neuropathy. Doesn't matter really as the only treatment they offered by the neurologist there was to increase the gabapentin dosage. I suspect my condition was caused by a Moderna booster shot back in the late 2022 period. The shot was followed by 5 months of a rash all over my body teared y steroids and than 10 months of dupixent shots. The SFN progressed from there. Oddly have it around my torso legs and partly upper torso. Not hands and feet like most. Not diabetic. Currently trying Low Dose Naltrexone and trying to get off of the Gabapentin; hate the side effects. Neurologists just keep upping the dosage. Also, take a low dose of Tramalod.
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@dlydailyhope
I am male and had most of those tests at the Cleveland Clinic in Weston about 18 years ago. I had only the first Moderna covid vaccine shot. I am being told by every resource that the nerves are now dead after almost 30 years since the suspected car accident that caused the trauma.