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The Caregivers' Guilt Dumpster - Open for business

Caregivers | Last Active: 2 days ago | Replies (376)

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Profile picture for Cheryl D @nmrcdigman

Babbsjoy - you were reading my mind!
I, too get irritated when I’ve really done my best, not talked harshly, tried to keep a calm look on my face, after I’ve been interrupted for the umpteenth time for another request by my husband who has LBD. Because he is no longer able to operate a TV remote, a cell phone, computer nor read, he is bored, frustrated and lonely. The second issue is that he has microscopic colitis that comes and goes at will. Not only does he have gut issues from the dementia sometimes, but the colitis on its own is dreadful, so we are pretty much stuck at home. It is hard to be everything they need. Actually it’s REALLY hard. And, no one who hasn’t been down this road really knows what it’s like. I don’t even share with friends / family everything - only here. I’m so grateful for the fellow who started this - and I’m really so sad that we have to have it and need it to save some sanity. Peace, Cheryl

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Replies to "Babbsjoy - you were reading my mind! I, too get irritated when I’ve really done my..."

@nmrcdigman

Is colitis generally common with dementia? Sorry to sound ignorant.

Cheryl D I've thought of what you said so many times, "Grateful for this site and sad that we have to have it and need it to save some sanity"...