← Return to High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

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Profile picture for starbabyoh @starbabyoh

@loribmt well first of all, as I (and probably Heidi) always have to correct medical professionals, it is NOT Factor VIII *deficiency*... That would be no clotting and result in hemophilia, which isn't rare. We have the global opposite - hyper coagulation of Factor VIII. It would be wonderful if there was an official name for it (and believe me, I've asked my hematologist to make one up!) but no, we have to spell it out for everyone while they're saying (just like your reply) "Oh! Factor VIII deficiency disorder". It's frustrating to no end.

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Replies to "@loribmt well first of all, as I (and probably Heidi) always have to correct medical professionals,..."

@starbabyoh

Hi,
When I had major surgery last year, the hospitalist doctor didn't really understand F8 when I tried to explain that I had a PE many years ago and insisted that my surgeon keep me overnight to be sure that I was OK. Apparently, they try to send people home the same day. Luckily, my surgeon is in practice with my hematologist. She called my hematologist while I was in pre-op and right there so he could explain the situation to her.
No way was I going to go home until I was sure I was OK. My surgeon kept me over for two nights since my surgery started late and went long.