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DiscussionWaldenstroms patient diagnosed with brain menigioma: What to expect?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (13)Comment receiving replies
Replies to "Waldenstroms cancer for two years and just diagnosed with menangiona after brain scan. Doc said will..."
My doctor is my oncologist that treats me for Waldenstroms non hodgkins …
Thank you so much!
Navigating all of these issues is trying. I’m staying optimistic for family but every once in awhile.Waldenstroms still not in remission, the new tumor, anemia,now macular degeneration.. seeing eye specialist Thursday. Neuo can’t see me until Jan . Oncologist trying to run interference for me there . Knowing it’s there I just want it out or radiation. Want to get on with my life. Sorry, just a weird morning.. it’s be the steroids. I’ll be better on a little while. Certainly helps so much being able to be honest.. afraid to with my family😟
If a neurologist or neurosurgeon can’t see you until January, find another doctor. Try a university teaching hospital if you can find one within a day’s driving distance. Most of us can. Stay strong. Keep us posted. Good luck!
Dolly
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Yes, over 90% of meningiomas are benign. Is the "Doc" you refer to your primary care physician? (P.C.P.) Being referred to a neurologist could be a next step, but his role would be to mostly refer you to a neurosurgeon. I would only follow the recommendation regarding removal or radiation of your meningioma from a neurosurgeon, not a neurologist. I'm sorry you are going through this stress.