Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Just my "Google research" :Meningiomas larger than 3 cm (yours would be 3.7 cm) may be considered for surgical removal, especially if they are causing symptoms or are located in a critical area of the brain. No, a larger meningioma does not necessarily indicate cancer; while larger tumors can correlate with higher grades and aggressive behavior, most meningiomas are benign (non-cancerous) and grow slowly. The grading of a meningioma, determined by its cell appearance under a microscope, is the primary factor for assessing its potential to be cancerous, not its size alone"

If you are on FB, look at a couple of these groups. I've joined 3, and have gleaned a lot more information from them than from doctors. Meningioma Talk, Multiple Meningioma Support Group, and there are other helpful groups.

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Hi, I was also diagnosed with a meningioma in the Front side of brain, about 4 month ago I had dizziness and ringing on the ear and mi migrain headaches where like 20 por month, I also noticed memory loss and trouble focusing or sometimes when speaking some words , so I had this MRI Scan and that was my diagnosis, its the size of a pea. Its scary I'm very worried about the future, if I have to get a risky surgery I don't know if I will do it ir not! But I trust God and know that he has the control in my life!

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Profile picture for brendakoviedo33 @brendakoviedo33

Hi, I was also diagnosed with a meningioma in the Front side of brain, about 4 month ago I had dizziness and ringing on the ear and mi migrain headaches where like 20 por month, I also noticed memory loss and trouble focusing or sometimes when speaking some words , so I had this MRI Scan and that was my diagnosis, its the size of a pea. Its scary I'm very worried about the future, if I have to get a risky surgery I don't know if I will do it ir not! But I trust God and know that he has the control in my life!

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@brendakoviedo33

Based on my experience, I encourage folks to go ahead and have the recommended treatment, which may include surgery. The meningioma won’t go away on its own and there’s some potential for things to quickly go really wrong, as they did for me.

As I’ve mentioned here, I had a stage 2 meningioma which bled, a stroke. And the odds of a successful outcome of the surgery went from maybe 9 in 10 to 1 in 10 (the neurosurgeon’s estimate when talking to my son who authorized the surgery) with that bleed. So instead of a routine scheduled surgery, there was a 911 call, a helicopter ride from a community hospital to a research hospital and emergency surgery at 3:30 in the morning.

This was almost 9 years ago. I realize the gift I’ve been given and try to make the best use of my remaining life.

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Profile picture for brendakoviedo33 @brendakoviedo33

Hi, I was also diagnosed with a meningioma in the Front side of brain, about 4 month ago I had dizziness and ringing on the ear and mi migrain headaches where like 20 por month, I also noticed memory loss and trouble focusing or sometimes when speaking some words , so I had this MRI Scan and that was my diagnosis, its the size of a pea. Its scary I'm very worried about the future, if I have to get a risky surgery I don't know if I will do it ir not! But I trust God and know that he has the control in my life!

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@brendakoviedo33: I assume the doctor who ordered the MRI had a recommendation after he read the report from the radiologist. What did the ordering doctor suggest as the next step?

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Profile picture for poofy @poofy

I was just diagnosed with a meningioma brain tumor last week. I'm freaking out a little. I saw that you had trouble with you vision. My vision has gotten really bad really fast. I don't know if were the same but can you describe what you see. I can't see at night. All the lights look like fire works. Its awful and pretty at the same time. My memory is also bad. I can't remember the name of things. And sometimes I lose my train of thought at the end of a sentence. I'm scared too

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@poofy I was just diagnosed as well and haven’t gotten in to the Dr yet. I just read my results from the MRi myself and now I wish I hadn’t. My memory has been bad lately too. I forget words and can’t finish a thought. Would like to keep in touch with others going through this scary stuff.

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welcome to the group and you couldn't have a better group of people to help you out.
best news i can give you is relax best as you can, worry don't help and can in my opinion be worse for your health. so here i go, fine someone or something that means the world to you and fight every day with that thought in the forefront of your mind. exercise to stay ahead of what might be coming your way. best of luck and huge hug for you today, lastly get some prayer groups going for yourself. have a blessed day.

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Profile picture for ladyluck236 @ladyluck236

@ankona is 37.19 mm large & does it usually mean that it is a higher grade when it is larger?

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@ladyluck236, I hope you've seen the helpful replies to your questions from members like @ankona and others. Size does not determine grade. Size refers to the dimension of the tumor, whereas grade refers to tumor's agressiveness (in terms of liklihood to grow slow or more quickly).

Have you learned what grade your meningioma is? Will you require treatment? How are you doing?

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Profile picture for Randy Shields @randallshields56

welcome to the group and you couldn't have a better group of people to help you out.
best news i can give you is relax best as you can, worry don't help and can in my opinion be worse for your health. so here i go, fine someone or something that means the world to you and fight every day with that thought in the forefront of your mind. exercise to stay ahead of what might be coming your way. best of luck and huge hug for you today, lastly get some prayer groups going for yourself. have a blessed day.

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@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in angels and miracles and that enough warriors fighting for the same cause helps. that's a good ting. tis all that i was trying to get across to you. i had a tumor right frontal lobe that caused a lot of the same symptoms you described. then they ended up going after a bleeder. imp doing great right now. i was to some of my family , don't know if you've watched the movie 50 first dates but that was me. have a awesome day today and prayers your way and blessings.

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I do. It's pressing on my frontal lobe

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I do. It's pressing on my frontal lobe. Drs talking about radiation but that scares me. I'm going to conference with a radiologist who is researching genetic predispositions for those who respond well to radiology, and those who do not

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