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DiscussionStem Cell Transplant Decision & Success
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 12 8:07am | Replies (72)Comment receiving replies
Replies to "@loribmt my hgb, wbc and plt are the primary counts declining. Lymphocytes are a little low..."
@jeffhampton Curious if your doctor has discussed the possibility of a DLI (donor lymphocyte infusion). This is an infusion of lymphocytes from your donor which may give an extra nudge to a sluggish immune response if there is a mixed chimerism. Sometimes that’s all it takes to get the numbers (and chimerism) where they need to be.
I know you’re feeling so discouraged right now but hang in there, Jeff. It gets better! Like I said before that first year can be really challenging…tests one’s mettle for sure! Especially having a lower hemoglobin and being a marathon runner. But give yourself some grace. Your body has been through ‘heck and back’ and it takes time to heal from that level of trauma. So as frustrating as this break from running is, this is the time to do down time maintenance on your body. Rest, recovery, healthy foods, plenty of water, low to moderate exercise, and more rest. Let your body, mind and soul recover while setting future goals. Do you think, even if you can’t enter the race, you’ll still attend the Leadville 100?
@jeffhampton What medications are you currently taking and for how long? For example, all anti-hypertensive drugs in addition to controlling high blood pressure, suppress production of red and white blood cells. Also, fatigue, muscle and bone aches are known side effects for some drugs. Based on my experience, blood counts may be going down after 2-3 months of use with certain medications. And fatigue may be getting much worse, as well as bone pain and neuropathy. You can review your medications product inserts online to see which ones may have these side effects and discuss it with your doctor. There may be other clinical reasons as well. Hope, this helps.
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@jeffhampton
I assume that you have tried Claritin for the bone pain, that really helped me