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← Return to Bowel issues after anal cancer treatment: Had the interstim procedure?
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Bowel issues after anal cancer treatment: Had the interstim procedure?
Colorectal Cancer | Last Active: Jan 13 7:06pm | Replies (13)Comment receiving replies
After a successful trial, I had the device implanted 10 days ago (bladder problems from anal cancer radiation 23 years ago), and it’s been miserable… from nausea to peeing every hour…can’t seem to get the settings right to recreate the trial success (Medtronic rep has been responsive and helpful).
I’m interested in hearing from anyone who had similar trial & error experiences… did it eventually work? How long did it take? Has anyone had it removed then had subsequent luck with PTNS or Emselle?
Trying not to get discouraged here!!!
Replies to "After a successful trial, I had the device implanted 10 days ago (bladder problems from anal..."
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@currimom
I am having the same experience. I had a successful trial (peeing about every 3 hrs is good enough!) mid-October and have tried 5? 6? Programs since then. I have peed every hour day & night, thrown up, had diarrhea — miserable. Then I end up retaining, having to be catheterized, get a UTI, and have 10 days of antibiotics before we can try a new program. Medtronic rep told me retention patients may take a year to find the solution. I, too, am very overwhelmed and discouraged. Hard to understand how the trial could be so good and the real thing so problematic. I would love to hear from anyone who struggled but did eventually get it right.
I am also interested in hyperbaric oxygen treatment (in addition).