← Return to Supporting Glioblastoma Patient: What can I expect as the caregiver?

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@justasmalltowngirl hello I am new to this group. My mom has glioblastoma grade 4 and was diagnosed last year dec. had surgery on nov.1 and then we got the pathology report back on dec.1.
She did radiation 3 weeks, had c-diff she had a really hard time. She did 6 months of chemo.
They told us the tumor didn’t comeback 2 weeks later we met with the surgeon and she had another surgery . She was
Monday surgery day, Tuesday icu and Wednesday home. Crazy right?
She ended back in the hospital 2 week after that due to a fall and hurt her head. They did about 4 ct scans. They didn’t say much but a little inflammation. Now all she does is sleeps all the time and is really confused!!!! I have been trying to get her to urgent care to get her 2 staples in head removed but she has no memory. Is this normal? Do you think she will return to normal or is this the new norm?? Nobody is telling me nothing.. is she declining? I don’t know if you can answer me but at least give me some info if you can that is… thank you so much for reading this long msg! Amber

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Replies to "@justasmalltowngirl hello I am new to this group. My mom has glioblastoma grade 4 and was..."

@birdlmao You certainly have a hard job in caring for your mom.
https://www.mayoclinic.org/diseases-conditions/glioblastoma/symptoms-causes/syc-20569077
Your mom has hit a stage with glioblastoma that can be pretty common. She just wants to sleep. You can play some of her favorite music that might stimulate her brain. Do you have nurses aides whom come to help you? Have you contacted Hospice for help? While your mom is in bed, you want to keep her comfortable. Bed baths, skin care, oral care, anything you can think of that will comfortable. And talk to her! And call her doctor—they know all the details!
Are you doing all the care by yourself? Any siblings to help?

@birdlmao, how are you and your mom doing? Any update? Thinking of you.