Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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I had my first Prolia shot yesterday with no side effects. I told the RN who have me the injection I also had fibromyalgia and she told me that because of the fibro I might not notice any of the side effects (eg, aches and pains that are common with fibro) others complain about. I will keep you posted on how it goes from here but so far so good.

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@cairnmama

I, too, was concerned about the many side effects. I have been on Prolia for 2 years (ie. 4 injections) and have had no side effects. My latest bone density test showed an increase in density, which is the best part!

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My first injection was yesterday and so far so good. No additional aches of pains. I'm a happy camper so far.

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@dolan

I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was 'freaked' out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.

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I was really concerned about all the things I had read about Prolia until I read your post. I had my first injection yesterday with NO side effects. Thank you....thank you....thank you.

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@colleenyoung

@candrgonzalez it is important to remember that some patients can take Prolia and other bisphosphonates without adverse side effects. People who don't experience side effects tend not to post on forums like this one. My mother has taken Prolia for years, an injection every 6 months. She experiences only the benefits and no side effects. I'm not saying you should or should not take Prolia, I just wanted to provide another story and person's experience.
Please talk to your doctor, tell her/him about your concerns and ask about possible alternatives and how risky the risk may or may not be for you. Like @sue225 says, everyone is different. You need to do what is right for you.

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As important as it is to hear about the problems people have with Prolia, it is just as important to hear about the positive effects. After researching Prolia on the internet I was really anxious about getting a Prolia injection. I had tried Fosamax but was unable to keep it down so my doctor said Prolia was the best alternative. Until I found this site I had not discovered any other place where people stated that they didn't have horrible side effects. Since yesterday (3/5/2020) was my first injection I don't have a lot to share but I am NOT having any side effects so far and hope that continues to be the case.

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@candrgonzalez

Hi. I was prescribed Prolia last week and I don't want to start because I'm afraid of the side effects. I think I am going to consult with my pharmacists. I was taking Fosamax oral but my Dr. told me this is contraindicated for me as I recently have been diagnosed with Barrett's Esophagus.

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Side effects are different for each person. I tried Fosamax but it would not stay in my stomach longer than 10 minutes. Then my dr. recommended Prolia. After doing a lot of research and reading I found this site and made the decision to give Prolia a try. Had my first injection yesterday and so far so good. Good luck with whatever you decide to do.

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@hopeful33250

@contentandwell That was a great article about food that is good for your bones! I also am lactose intolerant (but I do love ice cream) and it is hard to get calcium. Tums works for me as well. I was surprised by the mention of dry prunes. Since I'm a fan, I'll have to include more of those with meals, cereal, salads, etc.

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I too have added calcium (1200 mg), 4000 mg Vitamin D, K2, prunes, raisins, broccoli, and any other calcium rich food I can find to my diet. My calcium levels have been great so I must be doing something right.

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It isn't just side effects that I worry about. It's the long-term effects. SO much research out there about what all the biphosphonates do to our bones in the long run.... causes our bones to be more brittle than before. I'm not willing to take that chance. When my dentist tells me not to take them and my surgeon told me not to take them..... it gave me reason to research and look at long term.

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@proloaconcern

I had my first Prolia shot yesterday with no side effects. I told the RN who have me the injection I also had fibromyalgia and she told me that because of the fibro I might not notice any of the side effects (eg, aches and pains that are common with fibro) others complain about. I will keep you posted on how it goes from here but so far so good.

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@proloaconcern Thanks Barb for posting. Too often only people who have had problems post on sites like this. I hope you will continue to have no problems and that prolia will help your osteoporosis. I am still deciding which of these drugs I will take. The decision is difficult.
JK

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@proloaconcern

I had my first Prolia shot yesterday with no side effects. I told the RN who have me the injection I also had fibromyalgia and she told me that because of the fibro I might not notice any of the side effects (eg, aches and pains that are common with fibro) others complain about. I will keep you posted on how it goes from here but so far so good.

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Good afternoon Barb M @proloaconcern, Thank you for your positive post about your Prolia experience. We are trying to gather reports of positive as well as negative experiences so that our members will have more information with which to ask questions about the options and then finally making a decision that is right for them. I appreciate the comment about fibromyalgia. One of my besties has fibro and is concerned.

Keep posting with us. We need to read your words.
Be safe and protected today.
Chris

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I’ve been on Prolia for about 6 1/2 years, (13 shots) and have had some improvement, without side effects that I can attribute to Prolia at this time.

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