← Return to Bone marrow biopsy and/or blood tests for MGUS

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@newfiesgirl1 The relationship of trust must be present in the doctor and patient relationship. I would make sure the doctor is expert in the MGUS/Myeloma diagnosis and causation. I go to the major Cancer hospital(an hour drive) in my area and have the Multiple Myeloma team overseeing my care. I do not try and 2nd guess them. I am a nurse and evaluated their credentials before I went. So first, find your major cancer center. Get a referral for appointment with the MGUS/Myeloma team. The big ones may even have a MGUS clinic. You may not even need a referral. Be clear to tell them u are diagnosed with MGUS at this time. IF it is a major center it will have at least a blood cancer section if not a MGUS/Myeloma section and chief. I feel very comfortable with them as I email them within new symptoms and concerns and they send me responses and anything they want me to do before next appointment. Many community cancer centers treat this disease as a "nothing to see here" thing. A true cancer center treats it like a precancerous conditions and monitors according to risk. I also keep my primary informed and she orders the usual blood tests for MGUS. So she is on top of disease as well. For example, I had some protein in my urine. My MGUS team when I mentioned this wants me to bring a 24 hour urine with me at next appointment. No urgency with this but an addition and followthrough. That tells me now not to worry to much as if it were urgent they would move my appointment, rest etc up. So I keep both sides informed. The other issue with MGUS is the blood work. The M spike does not always appear. However other things do appear ie as previously mentioned protein in urine. You have to first find the right physician attached to as big a center as you are reasonably close to and work with primary to keep informed and collaborative. My primary knows, regardless of her beliefs, I consider this very important especially at my age. 83! I don't want to progress any sooner than I should and maybe not at all. It is good, at least with my primary, to keep her informed. She doesn't want to miss a diagnosis and have them find it at the cancer center next appointment. Keeps them on their toes. Question- why are you letting someone else choose your cancer doctor? You should choose him or her. Just a thought. Look up credentials, patient commentary and also watch any videos they have posted. If you need a referral, find the doctor you want and have primary make a referral specifically to that doctor. Just thoughts due to my career spent as a nurse. You need to be your own best advocate as our medical system leaves something to be desired.

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@sunsetchris I have Tufts Med Pref who only allow me to see Drs in my network w/in close proximity to my home so my choice ltd to local hospital H/O dept. I have HS & no spleen. Dr think I have MGUS due to IgM 4,655 latest results w increasing (since '24) kappa light chain ratio 2.39 and so want BMT. No symptoms.