Prolia treatment for osteoporosis: What is your experience?

Hi,
Do NOT start this drug. It has been the worst experience. The side effects are terrible! I have lost 1/4 of my hair, my legs ache all the time, and before this drug I was in the top 5% healthiest people in this country. Not anymore thanks to it. Remember, this drug is the same one they use to treat bone cancer and therefore contains the same chemotherapy chemicals. I had a special consultation with the endocrinologist and will return to my calcium and ergocalciferol (Vitamin D). Do your own research and remember that all of the osteoporosis drugs contain some chemo chemicals. Also, exercise and keep active. I wish I had never heard of any osteoporosis drugs. Good luck, K

I am sorry to read about your fractured femurs....wishing you a good recovery. Please let us know how long you were on Fosomax.
Thanks!

Unfortunately I was on it on and off since 2005. My physicians kept retiring and the new ones never ask me how long I had taken it. Although I read the insert multiple times I never realize there was a timeframe involved.
I have been taking calcium and D3 as well and a multivitamin. I thought I was doing everything right.

@lelia oh this is just awful. I have done some research on Reclast. It's bad. I have the worst g.i. tract and I dont think I can take much more aggravation. This last year has been extremely unpleasant. I am looking forward to month six of being on this 3rd injection because that's when I started feeling close to normal on injection 2. Your breathing side effect : how horrible. I have been a drug sensitive person most of my adult life: Reclast does scare me. G.I. side effects are listed but both my doctor and the fellow sitting in on my apptmnt said no g.i. side effects! Thanks for sharing.

@butch25350 my husband, the lawyer, said to me, after I told him that one cant just stop taking Prolia without a backup plan to prevent rebound fractures, "Were you asked to sign anything before being prescribed this (to the effect that you understand what might happen and are okay with that). The same could be said for Fosamax's potential to cause femur fractures.

@sue225 Thanks for the info you have posted about being on prolia. This is such a difficult and confusing situation when you need to be on a drug for osteoporosis. I do plan to take the drug route but am still deciding which drug. I may be limited due to being on immunosuppressants. For instance, if as @lelia has commented prolia "hijacks your immune system" that would probably be off limits for me. I need to do more research and speak further to my endocrinologist.
JK

Assume the pharmaceutical companies would make it an uphill battle - or impossible - to sue, but one could inquire.

Hi,
Do NOT start this drug. It has been the worst experience. The side effects are terrible! I have lost 1/4 of my hair, my legs ache all the time, and before this drug I was in the top 5% healthiest people in this country. Not anymore thanks to it. Remember, this drug is the same one they use to treat bone cancer and therefore contains the same chemotherapy chemicals. I had a special consultation with the endocrinologist and will return to my calcium and ergocalciferol (Vitamin D). Do your own research and remember that all of the osteoporosis drugs contain some chemo chemicals. Also, exercise and keep active. I wish I had never heard of any osteoporosis drugs. Good luck, K

@contentandwell you'll see when you read up on Prolia (Amgen's own site)that it there is a higher incidence ofyou infections (ear, sinus, bladder). Prolia does affect the immune system. Hopefully, your doctor will take everything into consideration and prescribe what is best for you.