Prolia treatment for osteoporosis: What is your experience?

What you stated is one of the reasons I decided not to continue taking osteoporosis drugs after stopping Fosamax. My understanding was that I would need to commit to staying on these drugs for the rest of my life, and that really scared me to think that whatever side-effects or other health issues I might develop, I would lose the benefits if I stopped them, and bones possibly becoming even more brittle than they ever were. I'm hoping the drug companies will eventually offer something that will be safe and won't hurt me whether I'm taking the drug or hurt me if I choose to stop taking it. Until then, I'm following the "natural program" like you, Debbie.

I’m sorry to hear that Prolia is causing you problems. I wanted to let you know that I had a terrible reaction to Reclast and have chosen to not are it again. Presently, I am taking Tymlos due to a fracture I had last year but my endocrinologist is planning to have me resume Prolia afterwards, which has worked for me. Good luck trying to sort it all out🧐

@migizii thankyou for letting me know about your Reclast experience. I still have 5-6 months before making the big decision. Although I'd like to just throw caution to the wind and say no to meds, there is a voice inside me saying, unwise. Prolia is such an easy treatment and it has definitely worked for me in terms of bone density improvement. If only the side effects would disappear.
Can I ask: did you fracture while on another osteoporosis medication (Prolia, or one of the other meds?)
Thanks again.

I fractured both femurs on Fosamex...I only have osteopenia but had taken Fosamax for sometime. I’m now looking at my alternatives between the injections.... like you I wish I could just throw caution to the wind, but I’m not sure that that’s the prudent thing to do. I visited my doctor yesterday and made an appointment for a month to discuss it again. I’ve been off Fosamax since November By order of my orthopedic doctor. He told me to find an endocrinologist which I’m trying to do.

I'm so sorry to hear (both femurs!). Against my doctors advice, I chose not to do anything when I was diagnosed with osteopenia. In my mid 50's I was osteoporotic. At 63 I finally realized the time had arrived to deal with the the bone loss. I never had a fracture and have not had one yet. It is unfortunate that there are still not great pharmaceutical solutions to this problem. So many stories out there. Important that our voices be heard.
I hope you find a good endocrinologist soon.

Thank you!

@sue225.....that is a strong and necessary call to action. I join you in claiming our right to a consistently helpful solution to this problem with bones. I know we are living longer these days and this potentially peaceful time in our lives cannot be overshadowed with expensive, non-performing medications with so many potential side effects that it seems we are sometimes better off without them.
Thank you for staying in touch and sharing your thoughts and experiences. Chris

@artscaping thank you. Mayo Clinic Connect is such a valuable resource as one tries to navigate through troubled waters. Doctors always give you statistics, placebo vs drug percentages. Here on this site are the statistics telling their stories. Being able to connect with others in a similar situation has been so helpful for me.

Hi,
Do NOT start this drug. It has been the worst experience. The side effects are terrible! I have lost 1/4 of my hair, my legs ache all the time, and before this drug I was in the top 5% healthiest people in this country. Not anymore thanks to it. Remember, this drug is the same one they use to treat bone cancer and therefore contains the same chemotherapy chemicals. I had a special consultation with the endocrinologist and will return to my calcium and ergocalciferol (Vitamin D). Do your own research and remember that all of the osteoporosis drugs contain some chemo chemicals. Also, exercise and keep active. I wish I had never heard of any osteoporosis drugs. Good luck, K

I am sorry to read about your fractured femurs....wishing you a good recovery. Please let us know how long you were on Fosomax.
Thanks!