Seeking opinion about where to get a second opinion.
I’m currently in treatment for AML at the University of Michigan Health-West , which is located in Grand Rapids, MI and connected to the University of Michigan system. I’m considering seeking a second opinion outside the system, most likely at Mayo or MD Anderson.
I’m not sure if my request is appropriate, but I’d like to hear from people who visited one or both of these for a second opinion. What’s important to me is not only expertise, but being given ample time to have my questions answered, particularly since I’d be traveling a great distance.
If you’ve had a particularly bad experience or a particularly good one at either location, I hope you will feel comfortable sharing it with me via private messaging.
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
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@loribmt — that’s so helpful. We’re taking a leisurely drive from MI.
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1 ReactionI went to Mayo Clinic from California
Beautiful campus everyone very helpful even travel assistance and a concierge
Insurance covered Dr visit and Dr was very helpful and knowledgeable
Lab and bone marrow procedure went very smoothly
Whole place is efficient and professional
Lobby beautiful
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2 ReactionsMy platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed a bone marrow biopsy & diagnosed Prefibrotic Myleofibrosis with JAK2, ASXL1, SRS2 & TET2 mutations. I started on 2,000mg daily of Hydroxy and she referred me to University of Virginia Cancer Center for a second opinion. They concurred with the diagnosis. Couple months later I'm on 1,000mg weekdays & 500 on weekends with platelets at 407,000. My doctor encouraged the 2nd opinion, partly because the disease is rare (1 in 100,000) & difficult to differentiate from a couple others. I'm 78 years old and am 3 years past the limit for a stem cell transplant. I've had a colon cancer resection also, which knocked me out of it.
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