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Husband developing memory issues
Caregivers: Dementia | Last Active: Nov 6 3:05pm | Replies (83)Comment receiving replies
@kjc48 I was a system engineer for AT&T for 25 years, so I guess we have a lot in common. I'm still fighting with the neurologist's office to get the needed information to Blue Medicare Advantage. Out insurance is thru my husband's carpenter's union, so I hesitate to switch. This is the first time we've been denied for any medical care (I had cancer 6 years ago) and I think it's more the neurologist's office not following up when they needed to. I'm trying my best to keep up with everything. I hope my husband can get the PET scan because we have an appointment with a neurologist associated with a memory center at Rutgers in New Jersey and I want to see what he has to say about the infusions,etc.
It's nice to have someone to talk to about this. Have a great day!
Replies to "@kjc48 I was a system engineer for AT&T for 25 years, so I guess we have..."
@elm123 I sent you a response but I do know that Medicare advantage plans have been changing their coverage like everything else. I'm not worried about the Part D plan (prescription) and covering the lequembe infusions 2026.
Gosh, there is a lot to worry about. I think I did mention just make sure MRI's are covered, as that's part of the lequembe process (although our doctor didn't tell us that initially). We stumbled on that before they would do the 3rd infusion.
Good luck at Rutgers in New Jersey. Let me know what they say about the infusions.
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@elm123 I'm reading this again. If the Petscan isn't covered, are the MRI's? As if your husband goes on infusions, he'll need periodic MRI's before the 3rd, 5th, 7th and 14th infusion. We stumbled on that after he started the infusions. I finally had the neuroligist's office print me out his full schedule for the remainder of the year, so I knew when his MRI's would need to complement his schedule. And even then, I had a hard time, as "MRI Brain Plain" on the work order (which I get a copy of), the hospital didn't want to take, because they wanted the words, MRI Brain with contrast or MRI Brain without contrast. I had to goggle to see MRI Brain Plain (was without contrast). OMG, so much detail, and so many "interrupts," it's hard on days to figure it all out.
THanks for your post. Yes, it is to have someone to talk to........ Gratitude, my mantra now everyday for this Mayo Connect site.