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DiscussionMGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: Oct 31 9:39am | Replies (117)Comment receiving replies
Replies to "@dcuste Yes, my last BMB was in 2010, so maybe it's time for another; however, because..."
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@suppiskey2surv
Thanks for the reply. I guess I need to do a lot more studying. My reading and talking with my Hemo/Onoc had me believing that now that I was officially diagnosed with SWM, I had a clearer path forward to treatment when I develop symptoms. It never occurred to me that MGUS is separate from SWM and that when SWM turns into WM, the treatments I get may not help because the issue is coming from MGUS and not WM.
I'm sorry to hear about your testing difficulties. I haven't seen that too much in my case. But every test they do bring up unrelated problems which require more testing. My last PET scan showed a hot spot, but not related to SWM. They didn't hesitate to do the testing needed to prove it wasn't cancer.
Good luck to you.