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Profile picture for Suppiskey2surv @suppiskey2surv

Thank you. It is. I doubt any of these things are serious, in and of themselves, which is why I fear my local healthcare providers aren't interested in addressing the MGUS as a cause for any of it or in identifying a disorder related to it that could give me the diagnosis (if there even is one to be found) that would be something I could offer as an explanation as to how I feel a lot of the time. Until a person is given a concrete reason for the things that keep them from doing certain things, most people (including doctors, family and friends) think that person is just either making it up for attention or that it's some sort of mental / behaviorial problem. Normally, I would agree with that but when you have things showing up in bloodwork, X-rays and scans, it should be considered very "real" and unimagined. I'm not sure what I'm going to try and do, here at the local level anymore. I tried to schedule something at MAYO but they denied seeing me. So, in the meanwhile I suppose, I shall just continue with the yearly M-spike monitoring and go from there.

Thank you for caring!

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@suppiskey2surv

Try Dana Farber in Boston