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MGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: Oct 31 9:39am | Replies (117)Comment receiving replies
@suppiskey2surv I'm surprised you haven't had a Bone Marrow Biopsy (BMB) yet. On my very first hem/ono visit for MGUS, she mentioned the BMB as an important step. We decided to postpone it until we see how quickly my MGUS progressed. A few years later and still with no symptoms, my numbers were high enough to now confirm where I was headed with the BMB. As it turned out, the BMB results changed my diagnosis from IgM MGUS to Smoldering WM Wild Type. I still have none of the symptoms that I'm sure will come, but now I know what conditions to look for.
Replies to "@suppiskey2surv I'm surprised you haven't had a Bone Marrow Biopsy (BMB) yet. On my very first..."
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@dcuste
Yes, my last BMB was in 2010, so maybe it's time for another; however, because my numbers were as low as they were back then and my M-spikes have been consistently as low as they are . . . everything here, at least, is just me being overly concerned over nothing. But, it IS something. At least that's how I feel about it. I'm not worried, necessarily, about MM anymore as I once was . . . but MGUS CAN be associated with a number of other things. That would be rare, but "RARE" is something my husband and I are all too familiar with. And, at least here where we live, even with supposedly some of the best of doctors around . . . "rare" is something that doesn't fit into their agendas. Walking into a doctor's office lately, though, with a request for a BMB would be like me asking for someone to give me a brand new car. It would be a relief to have one I could depend on, but the "return" on the expense wouldn't be there for them and my peace of mind doesn't seem to interest them in the least.
Thank you for caring and for sharing your story. I really appreciate it!