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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (675)Comment receiving replies
@tree7737 Hello, that is very interesting my mom lived to be 95 years old and was never informed of this issue. My father who was in the Navy and worked on ships wasn't diagnosed either. There is so much going on in our area cancer from creeks, working in federal buildings that has asbestos and all other issues. I just treat it as a blood disorder and not a cancer. seem like the word cancer is used to obtain more funding and research. A lot of doctors do not diagnose it as a blood cancer so nor do I. GOOD LUCK...my platelets are staying in the 280 range so far.
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@williamsjen my mother lived to 90, and I don’t think her blood issues had anything to do with it. She had a fall, ended up in the hospital for 11 days and her MD, (a close family friend 🧐)wanted to do angioplasty to clear her circulation. I had Healthcare POA and asked mother. She said no so I refused to sign do it. Tom Ganey (her MD) called me at 6 the next morning saying that if they didn’t do it, she might have to have an amputation! He said he didn’t think mother would adapt well to that at her age, so I caved and discussed it with her again. This time she agreed. What he didn’t disclose to either of us was that they would need to anesthesize her again the day after the procedure for a “look back” to make sure the arteries were still open.
She didn’t recover from that, even long enough to benefit from hospice.