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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Nov 25, 2025 | Replies (115)

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Profile picture for wileywright @wileywright

I was diagnostic mantle cell lymphoma in 2005. My hematologist started treatment with Hyper-CVAD plus rituxen, methotrexate and ARA-C. I received this regimen one week out of each month for 7 months. I've then received a analogous bone marrow transplant. I received most of my infusions at home. A week after each course my fever spiked. I then spent a week every month in the hospital on antibiotics, antifungals and antivirals. I spell a total of 54 days in the hospital receiving 29 units of blood and a eleven of platelets. I was pronounced in remission early on and have had a checkup with my hematologist every year for the last 20 years. I recently found out that MCL was incurable. Big surprise to me. At 86 years old I'm not worried.

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Replies to "I was diagnostic mantle cell lymphoma in 2005. My hematologist started treatment with Hyper-CVAD plus rituxen,..."

@wileywright Is it incurable? Who says so? Did you have a Pet scan confirming if it was still in your body somewhere? Have you not been cured? Were you not cured 20 years ago? What do you think? I await hearing back from you? Take care and long happy wonderful life