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Anyone else feel like people don't think Fibromyalgia is real?
Fibromyalgia | Last Active: Jul 24 12:16pm | Replies (74)Comment receiving replies
That is a good tactic. Focus on the symptoms and not the name. I am going to an orthopedic Dr. in 3 weeks because the hip that hurts daily didn't show any arthritis on x-ray. I think I will just go in and talk about the pain and see if they want to treat it and I won't say the word unless they bring it up. I don't know how to describe or relate to them the slow throbbing pain that wakes me up in the night, but I will try.
All of you have been a big help on this thread and I appreciate it. I know I don't deal with the level of severity many of you do, so I wish you all the best and pray for comfort for each of you. Please keep sharing as it the mood hits you.
Replies to "That is a good tactic. Focus on the symptoms and not the name. I am going..."
@kselliott22
I agree - I would not say a word about fibromyalgia. Let the ortho do some work to try to figure it out and come up with something that will help. If you say fibromyalgia, he will stop listening right then and dismiss your concerns.
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@kselliott22
I don't talk about it. I have several friends who have been involved in an exercise group for at least a decade. I declined to join it on the advice of my rheumatologist. All of them are still walking and in good shape while I have had to start using a walker. Every once in a while one of them will say something about being glad they exercised and how many miles a day they walk. I feel like it's a jab at me. I also have gluteal tendinopathy which is the main cause of my mobility issues. Apparently there is no treatment for that other than physical therapy. Between the fibro and tendinopathy, I am miserable most of the time.