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Immune Thrombocytopenia Purpura (ITP): What helps?

Posted by naiviv @naiviv, Sep 2, 2022

Has anyone been diagnosed with ITP? Does anyone take supplements for ITP? Food to eat to increase platelets?

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becca13 | @becca13 | Oct 2 8:34pm

Thanks for responding… I look forward to following your journey..
I really hope I Never have To go off of N Plate it has been a wonderful solution in my case.
It can be so scary I hope everything goes well with you💜🙏🏼

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becca13 | @becca13 | Oct 2 8:42pm
In reply to @docheat72 "I am now going to transition from NPlate to Promacta. I will comment after a few..." + (show)
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I am now going to transition from NPlate to Promacta. I will comment after a few days about side affects

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@docheat72
Thanks for replying I look forward to following your journey…may I ask why did you have to transition?
I hope everything is going well for you. 💜🙏🏼

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holly5 | @holly5 | Oct 23 7:16am

My daughter was diagnosed with ITP after a year of frequent Strep infections, platelets down to 2000, all other labs normal. Steroids had no effect, IVIG with only temporary improvement. Eltrombopag is working well but she is experiencing a lot of nausea and fatigue. Does anyone have experience with Avatrombopag? No one will touch her tonsils, but we are wondering if they are continuing to stimulate her autoimmune antibodies, regardless of negative swabs.

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swalex | @swalex | Oct 23 10:14am
In reply to @jimmyb63 "They have not yet used IVGG yet just the IVIG (Immune Globulin). I will ask about..." + (show)
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They have not yet used IVGG yet just the IVIG (Immune Globulin). I will ask about the IVGG. They are still stating ITP and have ruled out many things. The bone marrow tested was negative for everything. They have run so many blood tests too many to list. The only thing they said was I may develop RA but no symptoms. There have been no new medications. I did ask about amlodipine which they took me off of and put me on lisiniprol. The doctor said even if it was medication related they would drop but not down to 2000. They are going to try NPLate today if they can find some, from another hospital here in town. She also put me on Dapsone. They said they have only ever had one case like mine that didn’t respond to one of the first 3 treatments. This is the reason I’m seeking a doctor/hospital that has dealt with my situation before.

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@jimmyb63
A negative bone marrow test for immune thrombocytopenia (ITP) is expected, as the purpose of the test is to rule out other conditions like leukemia or myelodysplastic syndrome, not to diagnose ITP itself.
https://emedicine.medscape.com/article/202158-workup#:~:text=serious%20internal%20bleeding.-,Bone%20Marrow%20Examination,absence%20of%20other%20significant%20abnormalities.

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Colleen Young, Connect Director | @colleenyoung | 11 hours ago
In reply to @holly5 "My daughter was diagnosed with ITP after a year of frequent Strep infections, platelets down to..." + (show)
Profile picture for holly5 @holly5

My daughter was diagnosed with ITP after a year of frequent Strep infections, platelets down to 2000, all other labs normal. Steroids had no effect, IVIG with only temporary improvement. Eltrombopag is working well but she is experiencing a lot of nausea and fatigue. Does anyone have experience with Avatrombopag? No one will touch her tonsils, but we are wondering if they are continuing to stimulate her autoimmune antibodies, regardless of negative swabs.

Jump to this post

@holly5, I believe other members like @agfromtheuk @johnbowrey @et09 @lfn2124 have experience with avatrombopag (brand name Doptelet)that they may be able to share.

Holly, has your daughter changed medications?

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