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My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: Oct 28 2:43pm | Replies (53)

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Profile picture for millds @millds

@colleenyoung You are correct. I mistyped and it is NETRF!
To deal with the stress, I found ways to educate myself regarding NETS. There are additional online groups supporting NETS education and research. I started a regional support group. This helped me to have in depth conversations with my doctors and to find support locally.
We also found a perfect support dog. I say we because my husband has walked this journey with me. She was 4 when we brought her home and she is calm, loving and easily trained. Our Lady goes almost everywhere with us. She is a rough coated Collie.

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Replies to "@colleenyoung You are correct. I mistyped and it is NETRF! To deal with the stress, I..."

Hello @millds

I hope you can join the Mayo Clinic NETs support group, which meets monthly. Our next meeting is on November 6, via Zoom. Here is a link about the guest speaker as well as how to register for the meeting in order to obtain the Zoom link,
https://connect.mayoclinic.org/comment/1424759/
After the speaker, there is time to share with other members of the group. It is a great way to learn more about the various treatments and meet others who are on the same journey. I hope you can join us!