← Return to Prolia treatment for osteoporosis: What is your experience?

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@cireland

I am so sorry. It's such a lonely and scary place to be. There should be reliable studies available that show the percent of people who have adverse effects from each of these drugs, but I haven't found such a study yet. I did a lot of research and decided on Tymlos which is a daily injection. Had loss of appetite in the beginning and some nausea, but my body seems to have adjusted to it. I also wasn't thrilled with the local endocrinologists and did more research and am going to the Osteoporosis Center at UConn about a 2-hour drive, but it's worth it. Have been on Tymlos for a year and just had a bone scan. The T scores for my spine are all in the normal range. I eat well, take supplements and exercise. I am 80 and lead a full, busy life. I am doing more research because I don't want to go on one of the biophosphonates after I finish with Tymlos. Am looking into Naturapaths -- and also reasearching Chinese herbs. Don't be discourage -- there are solutions. There is a FB group -- Natural Remedies for Osteoporosis, which is also interesting. Good luck. If I can be of any help, please let me know. Regards, Carole

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Replies to "I am so sorry. It's such a lonely and scary place to be. There should be..."

Thank you. I am about 85 percent sure that I will not take the Prolia injections too many have had horrible results

Everything I've read and heard from friends....once you come off of Tymlos or Forteo, you almost have to go on something else, as T-scores will once again drop. That tells me that the 'improved t-scores' while on these drugs are due to false readings. If bone density improves, it shouldn't get bad once again when you drop the drug. My dr is strongly advising me to go on Forteo....I'm scared to death of the side effects.