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Neuroendocrine Tumors (NETs) | Last Active: Oct 28 2:43pm | Replies (53)
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@kbtexan, I believe that @millds was referring to NETRF Neuroendocrine Tumor Research Foundation https://netrf.org/
@millds, how did you cope with the PTSD? What triggered it?
Replies to "@kbtexan, I believe that @millds was referring to NETRF Neuroendocrine Tumor Research Foundation https://netrf.org/ @millds, how..."
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@colleenyoung You are correct. I mistyped and it is NETRF!
To deal with the stress, I found ways to educate myself regarding NETS. There are additional online groups supporting NETS education and research. I started a regional support group. This helped me to have in depth conversations with my doctors and to find support locally.
We also found a perfect support dog. I say we because my husband has walked this journey with me. She was 4 when we brought her home and she is calm, loving and easily trained. Our Lady goes almost everywhere with us. She is a rough coated Collie.