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DiscussionMyelofibrosis: Anyone have experience with Vonjo (pacritinib)?
Blood Cancers & Disorders | Last Active: Nov 1, 2025 | Replies (36)Comment receiving replies
Replies to "@1pearl my UCLA doctor is very nice but when I selected him we did not know..."
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@lyd0218
My personal experience
The symptoms you mentioned I had and suffered from them ! I had PV POLYCYTHYMIA VERA FOR MANY YEARS! NOW ITS MOVED TO MF MYELOFIBROSIS! I would
Look FOR ANOTHER DOCTOR WHO SPECIALIZES IN THESE ILLNESSES! YOUR DOCTOR SHOULD NOT
DISSMISS YOUR EXPRESSED SYMPTOMS!!
You DESERVE BETTER CARE AND THIS DOCTOR IS NOT FOR YOU!! Do NOT BE SHY OR AFRAID TO GET A GOOD DOCTOR ! Every ONE HERE IS PULLING FOR YOU ! Good luck! STAY STRONG