@rivieramaya2009
Good evening! I am also wondering if anyone can see and read our posts ! I will text one of the mentors and ask her tomorrow morning
96 are my platelets !! 😇 I must have texted incorrectly! Wow ! You are very thin! Your HGB hemoglobin is less than normal! My was only 8,5 last tests! I am being treated at a teaching cancer centers, I will share once we know our posts are private ! I believe that my previous hem/onc
Failed me by not paying closer attention to my monthly numbers! He kept me on JAKAFI even though all my numbers were dropping!! Now ! The GOOD LORD NEEDS TO HELP ME GET SOME BLOOD ! I feel that I should be able to live much longer than this new doctor told me !! It was shocking 😮
I am in CT SO ITS 8:40 pm here ! Yes I get fogg and groggy often! Read that it’s lack of oxygen because my HGB is low so not enough oxygen going to my brain ! It affects my eye sight especially reading!
So your platelets are high , are you taking a baby aspirin every day ? If not , ask your doctor about it ! Did anyone test you for gene mutation ?
I have JACK 2 mutation
Tomorrow I am going to my daughters for the long weekend! One of my grandsons just called to make sure I am coming tomorrow 😊
I will finish so I can get ready to sleep . I get up very early so get tired . If I find out whether our texts are private I will let you know !
Take care of yourself!! Don’t diet ! It’s ok to eat some bread and pasta ! I will text as soon as I can .GOD S BLESS US