Prolia treatment for osteoporosis: What is your experience?

From my research, Reclast has the most severe reactions. It's an annual injection. I just read more about it and apparently the negative side affects are more prevalent in women over 65. I would look into Tymlos which is a daily shot -- very easy to self-administer. I had some side affects at first, but they did not last and I just had my bone scan and my T scores for my spine are all within the normal range.

You're more trusting than I am. I would not automatically trust any inforamtion found on a Pharma site; they have one goad -- to make money. We need a Consumer Reports for medications.

Agree with you.....100%.

I just did a binge reading of most of the posts here and recall you bought or tried the Algecal supplements and wondered how you did on those and if you have had a DEXA scan after you started? Was there any results? Was interested in possibly buying into it but not sure. Thank you

Hi,

The side effects are terrible! You are putting the same chemotherapy chemicals into your body as are used to treat bone cancer. I have terribly painful legs that are almost unbearable when lying down, general aches and I lost about 1/3 of my hair. I have not experienced the jaw or teeth problems reported but am stopping this before I do! I had 2 shots and the dr. said there would be no side effects! How do I quit without getting the rebound broken bones? I don't know but do not start. By the way, all of the osteoporosis drugs have the same chemicals in varying amounts. I am sticking to calcium and ergocalciferol after this. Best of luck, K

If any of you are on Facebook, there is a private group you can join....Osteoporosis Natural Remedies. Great info and suggestions! The more I read and study about all these drugs, I would never choose to put any of them in my body! Our bodies can and will heal themselves if we give them the right, healthy options. Our bones rebuild every 10 years.

Most of us here in the United States don’t get enough boron. Unless the ground has it, the foods that we eat won’t have it as well. You can safely take up to 30mg a day. Also, we need K2 as it tells our body to put calcium in the bones. Vit D3 is extremely important.

Remember, bone strength is as important as bone density.

Ive talked with several who have increased their bone density WITHOUT these harmful drugs. We can do this safely and naturally.

@harper2018 yes, severe constipation and bloating. Always uncomfortable. The last two and a half weeks before my third injection was the first time I started feeling sort of normal again. Then I got the injection (6 months and two weeks after the 2nd) and all the trouble back again. Totally dependent on laxatives. I have always had an irritable bowel but since the Prolia there are no good days. Also have started with pain around the sternum and clavicle area (cardiac ruled out, no fractures). Some of the discomfort is from acid reflux but mostly feels muscular. Have call in to endocrinologist. My bone density has improved significantly but the side effects are now becoming too unpleasant.

I have osteoporosis, have taken Fosomax for over a year; did nothing for me, Dr. wants me to get Prolia injections, scared to put this chemical in my body. Due to adverse side effects. Don’t know what to do.

I am so sorry. It's such a lonely and scary place to be. There should be reliable studies available that show the percent of people who have adverse effects from each of these drugs, but I haven't found such a study yet. I did a lot of research and decided on Tymlos which is a daily injection. Had loss of appetite in the beginning and some nausea, but my body seems to have adjusted to it. I also wasn't thrilled with the local endocrinologists and did more research and am going to the Osteoporosis Center at UConn about a 2-hour drive, but it's worth it. Have been on Tymlos for a year and just had a bone scan. The T scores for my spine are all in the normal range. I eat well, take supplements and exercise. I am 80 and lead a full, busy life. I am doing more research because I don't want to go on one of the biophosphonates after I finish with Tymlos. Am looking into Naturapaths -- and also reasearching Chinese herbs. Don't be discourage -- there are solutions. There is a FB group -- Natural Remedies for Osteoporosis, which is also interesting. Good luck. If I can be of any help, please let me know. Regards, Carole

@debbiem Eventhough I am having side effects from the Prolia, I do not regret giving it a go. I will speak to my endocrinologist and see what happens next. Originally she had wanted me on Forteo. Any of the bisphosphanates, (e.g. Fosamax) were contraindicated for me. Fractures have side effects too.