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HER2 non small cell adenocarcinoma stage 4 lines of treatment
Lung Cancer | Last Active: 6 hours ago | Replies (10)Comment receiving replies
@lls8000 thank you . We had a second opinion at Mayo when we started and they concurred 💯 with the first line treatment I mentioned in our local hospital .
It’s chemo carboplantin, alimta and additionally immunotherapy- keytruda.
The second line explained to us is :
Fam- Trastuzumab deruxtecan-nxki for HER 2 over expression in non small cell lung adenocarcinoma. (if we find first line not working)
It seems to be working at mid cycles but it feels like , are we wasting time? Can it be more successful do other ?
Obviously we are still getting educated and it is overwhelming. It’s a scary feeling to think we have to negotiate .
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@mil63 , Knowing that you have a second opinion that agrees with the treatment is reassuring. I'm sure you want the best for your husband, that's obvious. Sometimes that may mean leaving another treatment that is known to be effective as a future step. Possibly, it's that the doctors want to 'save' that treatment for later. Knowing that there is another treatment available down the road is reassuring. As stage IV patients, we depend on knowing that there are options available, options that are proven to be successful, when our current treatments fail. That gives me hope. It makes it easier to go in for surveillance scans. I know when (not if) my cancer progresses, I have another treatment lined up and ready to go. We never want to be out of options. It's a difficult discussion, but it may be helpful to talk with his oncologist about this too.
I know his diagnosis is a lot to process and take in. Your head is likely spinning, and that's expected. You're trying to do your best to support him, and that's what great care partners do! He's fortunate to have you by his side. At his next appointment, can you ask about the order of treatments?