I have been in Clonazepam 0.5mg TID for 18 years

Posted by jeanne51 @jeanne51, Jan 7 4:49pm

My psychiatrist retired and I was left to find a replacement. It seems there are a majority of nurse practitioners these days taking patients as providers, many do not take insurance. I found a nurse practitioner with a very good educational background. I saw her in person and she renewed the medications I was in for 6 months. Next month we had a zoom meeting and she told me she wanted me off the Ambien and Clonazepam because I would get dementia or Alzheimer’s with long term use. She insisted I start tapering against my will. I had school phobia in grade school, began having depression symptoms in my 20’s, and in my late 20’s had two major panic attacks. I have been depressed with anxiety most of my adult life. I have been hospitalized twice because of this. I have never asked for an increase in dosage of Ambien or Clonazepam fur 18 years after I found a wonderful psychiatrist who was so good at medication management.
Now, tapering Ambien and Clonazepam I have started self mutilating by picking my fingers raw until they bleed. I can’t sleep at night, I have become socially phobic. I have become isolative and often think of suicide with no plan. I am 73 years old and I think it is so cruel to put me through this when all I want is to have quality of life, not quantity. I live with my husband in adult senior living which I have not adjusted to. Taking these meds away has decreased my desire to exercise and my endurance is decreasing. My new provider told me if I didn’t want to taper my medication that I should find a new one provider. I did manage to taper the Ambien but I am down to half of the Clonazepam and feel like I can’t go on. Please help me. I am on Paxil and Wellbutrin for depression but it is anxiety and insomnia making my life miserable. I am not the same person I was a year ago.
I feel miserable, she has destroyed any quality of life I had. I really don’t want to live anymore.

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

Hi. Just joined. I've been on btween 2 @ 6 mg a day of Lorazepam for the last 20 years. Heard about all this brain damage and decided to go off it. Also I ran out by a week early the last 2 out of 3 months. My doc switched me to 1.5 mg Klonopin. (It was an abrupt switch and I was involved in that decision) it's been 3 weeks now. I'm having massive panic attacks and way worse anxiety than ever in my life. After a couple of falls, I cannot even go out my front door. Questions: Is the Ashcroft manuel still the gold standard for benzo conversion? And how much longer is this going to last? I don't think I can take it anymore. Final comment: medicine has changed a lot in the last 20 years. I've been trained in the new techniques: music, meditation, deep breathing...and honestly, it just feels hopeless

REPLY
Profile picture for littlegoose @littlegoose

Hi. Just joined. I've been on btween 2 @ 6 mg a day of Lorazepam for the last 20 years. Heard about all this brain damage and decided to go off it. Also I ran out by a week early the last 2 out of 3 months. My doc switched me to 1.5 mg Klonopin. (It was an abrupt switch and I was involved in that decision) it's been 3 weeks now. I'm having massive panic attacks and way worse anxiety than ever in my life. After a couple of falls, I cannot even go out my front door. Questions: Is the Ashcroft manuel still the gold standard for benzo conversion? And how much longer is this going to last? I don't think I can take it anymore. Final comment: medicine has changed a lot in the last 20 years. I've been trained in the new techniques: music, meditation, deep breathing...and honestly, it just feels hopeless

Jump to this post

Thank you, Dbomas

REPLY
Profile picture for frouke @frouke

I’m so sorry to read how badly you are feeling and why, I have nightmares about going through the same thing. I’m also 73 and I have been taking Ativan for about 23 years now, I also never increased my dose and it’s the only medication that works for my anxiety, I have tried so many different medications to no avail but this drug helps me to cope. My doctor is retiring this year and he’s the one who started me on this medication, I know that he’s leaving another doctor in his place but it doesn’t mean that the new doctor will provide the med so I’m already stressed. I think that you should keep looking for another doctor or nurse practitioner that is more comfortable with allowing you to stay on your medication, it’s just unfair to put a person through so much suffering. The whole problem started when the government decided that benzodiazepines are bad and now I’ve been reading so many stories about people who are forced to withdraw from their medication and causing total chaos, it takes years to properly get off the meds and if it’s too fast then chances are they will relapse. Please don’t give fight to get help even if you have to go to the hospital to get help, I sincerely hope that you will find someone else to help you with this situation,

Jump to this post

Yes, government propogandized paranoia against benzos is hitting me also.,
My four valium a day that my retired psychiatrist of lifelong experience is endangered after years of it for serious generalized anxiety disorder, by this nurse practitioner. She is completely against them and such a dose, both being my mainstays.
Without the valium I may go bonkers... not on withdrawl, I have forgotten to take them so far today (heroin addicts never think "did I have my fix today or not?").
I do catch up the dosing else I may crash, which really is crazy-making.

What the gov't hates about benzos is not what they purport, but to eradicate prescribing of them, the generics, in favour of new side effect ridden pills Big Pharma has to sell.
Society is crashing to self-destruction. Sorry kids, it's true, and current trends are causing it all.

REPLY
Profile picture for arthur57 @arthur57

I'm sorry to hear of your issues. Obviously in your situation I can see the need to stay on the meds, even with risk of dementia etc. which I have read is a possible side effect of clonzapem. It's funny how these drugs effect people so differently. I was only on clonzapem at same dosage you are for 7 months and it screwed me up good and doctor didn't want to accept the side effects I was having as being due to the benzo. Well he's an idiot who has addicted many of his patients and is old school (old period) and I wish now I understood then what he was prescribing for me, simply to help me sleep better. I can understand the issue with benzos now. I will tell you, younger physicians will tend not to prescribe these, it's the older docs who do and did not understanding how they can affect people. I talked to a recently retired pharmacist a year or so ago about clonzapem and he was surprised it was still even available, said it was a terrible drug and from the 70's and 80's. Unfortunately pharmacists understand these meds better than any doc who prescribes them. It's sad. I do wish you well and sorry this is your current situation. I can only hope your body adjusts over time if you can't find a way to continue on these meds.

Jump to this post

@arthur57 I am one that sides with the doctors on short term use of these meds. I was on clonazepam for 12 years. One day my psychiatrist told me it was time to start getting off. I kicked n screamed, argued that these meds were "the only thing that worked for me". She wasn't going to budge. I've now been off those meds at least 10 years. It forced me to find other things that worked. And guess what? It was the best thing she ever did was force me off. The change in me was like night n day. My ex was a witness to this. I went from hardly having any energy low mood, to completely different. I had been taking .5 twice a day for 12 years. I did not misuse them.
The longer we take those meds the more our brain convinces us "we need it and it's the only thing that works". I found Marijuana. I then found a stronger form of it called shatter. I now use that to control my anxiety. And now I'd much rather use that most of the time then any pill. If my anxiety does peak really high my doctor will give me a supply of 10 Ativan. That I only get a maximum of twice in one year. I asked for it to be done that way bc of how dependant I got from the clonazepam. Did I get dependant on those meds? I absolutely did and I had no idea that I had.
20 years ago I met a man and I was on those meds still. Well he liked how they made him feel and 20 years later he's still on them saying the exact same thing I said- its the only thing that works. When i met this guy he didn't even have anxiety. Had never taken these meds before. I will forever blame myself that i got him started. And so, I get extremely concerned when I hear people say that. It sounds like something an addict would say. I saw above where a woman said she's tried every other med and nothing else works. Have u tried things that aren't medication?? I dunno just my 2 cents. There are many many other ways to combat anxiety other than medication. Another thing I've discovered is the coldest water u can get outta your sink, let it run for a bit, and then splash it all over the back of your neck. That's another thing that works. There are so many other ways to get through this. Mj doesn't work for everyone but I've seen quite a few replies in fb that agree with me.
I'm extremely happy these doctors are realizing just how detrimental these meds can be.
Ps: yes the withdrawal isn't fun. And yes your brain can go a little crazy. By the time I was off them, 3 months was when everything really settled. Give it time for your brain to settle before u think about giving up. They really mess with your mind.

REPLY
Profile picture for missstubborn @missstubborn

@arthur57 I am one that sides with the doctors on short term use of these meds. I was on clonazepam for 12 years. One day my psychiatrist told me it was time to start getting off. I kicked n screamed, argued that these meds were "the only thing that worked for me". She wasn't going to budge. I've now been off those meds at least 10 years. It forced me to find other things that worked. And guess what? It was the best thing she ever did was force me off. The change in me was like night n day. My ex was a witness to this. I went from hardly having any energy low mood, to completely different. I had been taking .5 twice a day for 12 years. I did not misuse them.
The longer we take those meds the more our brain convinces us "we need it and it's the only thing that works". I found Marijuana. I then found a stronger form of it called shatter. I now use that to control my anxiety. And now I'd much rather use that most of the time then any pill. If my anxiety does peak really high my doctor will give me a supply of 10 Ativan. That I only get a maximum of twice in one year. I asked for it to be done that way bc of how dependant I got from the clonazepam. Did I get dependant on those meds? I absolutely did and I had no idea that I had.
20 years ago I met a man and I was on those meds still. Well he liked how they made him feel and 20 years later he's still on them saying the exact same thing I said- its the only thing that works. When i met this guy he didn't even have anxiety. Had never taken these meds before. I will forever blame myself that i got him started. And so, I get extremely concerned when I hear people say that. It sounds like something an addict would say. I saw above where a woman said she's tried every other med and nothing else works. Have u tried things that aren't medication?? I dunno just my 2 cents. There are many many other ways to combat anxiety other than medication. Another thing I've discovered is the coldest water u can get outta your sink, let it run for a bit, and then splash it all over the back of your neck. That's another thing that works. There are so many other ways to get through this. Mj doesn't work for everyone but I've seen quite a few replies in fb that agree with me.
I'm extremely happy these doctors are realizing just how detrimental these meds can be.
Ps: yes the withdrawal isn't fun. And yes your brain can go a little crazy. By the time I was off them, 3 months was when everything really settled. Give it time for your brain to settle before u think about giving up. They really mess with your mind.

Jump to this post

@missstubborn - So glad you were able to get off of this med. It's addictive, people just don't realize that they are dependent on it, and it doesn't take long before that occurs! In my opinion, it's an absolutely rediculous practicew for any provider to write a script for this terrible Benzo. Younger docs have been taught in medical school that it's crap, based upon what I've learned.

I will say once again, I have 3 physicains in my family and two are the brightest of the bright, both at John Hopkins and one of them told me a couple of years ago - Be your own advocate because I can't believe what I've seen in my profession. The nutty doc that put me on this med had no clue what he was prescribing - absolutely none! Best to you!

REPLY
Profile picture for arthur57 @arthur57

@missstubborn - So glad you were able to get off of this med. It's addictive, people just don't realize that they are dependent on it, and it doesn't take long before that occurs! In my opinion, it's an absolutely rediculous practicew for any provider to write a script for this terrible Benzo. Younger docs have been taught in medical school that it's crap, based upon what I've learned.

I will say once again, I have 3 physicains in my family and two are the brightest of the bright, both at John Hopkins and one of them told me a couple of years ago - Be your own advocate because I can't believe what I've seen in my profession. The nutty doc that put me on this med had no clue what he was prescribing - absolutely none! Best to you!

Jump to this post

@arthur57 thank you for sharing! I absolutely agree with you. Best to you, right back sir. Have a wonderful rest of your day!

REPLY
Please sign in or register to post a reply.