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← Return to Prolia treatment for osteoporosis: What is your experience?
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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)Comment receiving replies
I was on Alendronate (Fosamax),for a number of years. In September 2018, I fell while on vacation and I suffered a cracked,hip, pelvis and right femur fracture. I had an emergency IM Nailing. After 51 weeks it was discovered that the repair was a delayed union... due to the wrong size of nail used. I had the replacement nailing in August 2019. During PT I was experiencing pain in my left femur. During my next orthopedic appointment a stress fracture was discovered in the left leg. I had IM Nailing on the left leg in November 2019. I also broke my fifth Metatarsal in 2016. Which resulted in surgery and pin placed.I have never been diagnosed with osteoporosis. I was diagnosed with osteopenia about 10 years ago....around age 55.I had another bone density in July,2019, my condition was still deemed osteopenia.
So, I was taken off Alendronate, as the orthopedic doctor felt I had been on it too long.My doctor wants me to go to an endocrinologist and start on Prolia, Tymlos or Forteo. I’m not crazy about daily shots... I’m taking Lovenox for blood thinner after the latest surgery ( and I took it after the August surgery too)..... which I’m not crazy about; but of course I am doing it.I am also concerned about the side effects and taking a hormone. I have never had any type of hormone therapy. I am overwhelmed by finding an endocrinologist, medication costs and the side effects... especially cancer. Any help on these decisions wound be appreciated.
One question I have Is did you stop the Forteo because of the length of time you used it?
Replies to "I was on Alendronate (Fosamax),for a number of years. In September 2018, I fell while on..."
@butch24350 You have been through a lot, for sure. I am surprised that you have so many problems but just have osteopenia, not yet osteoporosis.
I am just beginning this miserable journey and have an appointment with an endocrinologist. My appointment is not until January so I haven't read as much as I intend to about the various drugs prescribed for osteoporosis. I thought the shots were done less frequently, either weekly or monthly, and of course Reclast is yearly.
@cherriann I do know of people who have not had any problems and have been helped by these drugs so I think it is worth a try once the right drug is chosen. As the drug commercials on TV always say after telling all of the possible side-effects, "your physician has decided that the benefits of the drug outweigh the possible side-effects". or something along those lines. I always try to remember too that generally people looking for answers are the people who have had problems. If everything is fine you have no reason to look for answers.
I will do my own research. Along with that and choosing a doctor in whom I have confidence I will proceed cautiously.
I had a "minimally displaced fracture of the greater trochanter of my L femur" in July. That is a somewhat minor fracture but the pain was substantial and the effect on my life was severe. I still have some pain that I think is from it although it could be bursitis pain. Obviously the last thing I want is to have another fracture, I am living in fear of winter with its icy parking lots.
JK
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Hi -- I don't know where you live, but if you're in the Northeast, I highly recommend UCONN's Osteoporsis Center in Farmington CT. If you are not in the Northeast, you might want to look for a similar center in your area. Good luck.