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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Mar 29 11:52am | Replies (1218)Comment receiving replies
@contentandwell
Hi,
This is indeed a complex and confusing situation but everyone has to decide for themselves and trust their instinct. What I am doing currently for my osteoporosis is taking a daily formula of vitamin d3+K2 and a bone and joint formula ...both powders dissolved in water . I am avoiding as many foods with oxalates as I can since I recently found out that they tend to inhibit the absorption of minerals like calcium. I have stopped eating spinach and some other greens which I had been eating almost daily for years for eye health.
Diet and lifestyle are so important for bone health. I do have 3 gym classes a week and have upped my walking which is a great weight bearing exercise. Since I don’t smoke or have any organic medical problems ,have great BP and weight and no fractures, I have decided I am a good candidate for not taking drugs. I did take Boniva and Actonel about 15 years ago with minimal improvement. This is purely a personal decision and based on my holistic approach to good health.
It’s been stated before but do your research, asses your overall health and lifestyle and listen to what your doctor has to say and then make a decision. My point is not to blindly trust what any doctor says before you do make a decision. If anyone decides to continue drugs , I would also urge them to include healthy activities and watch their food intake because you can’t always rely solely on drugs.
FL Mary
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@imallears I am restricted in using things like powders you mention due to being post-transplant. Many of those things are not very well regulated so are not recommended.
I also go to the gym three days a week, and do three days a week in the water. I was thinking the water may not be much help but I have been noticing that the resistance of the water really does have an impact if you are vigorous, which I am. I do a water aerobics class for an hour and then about another half hour of water jogging. My arms and legs are definitely tired when I am done. Exercise is of course recommended but overall there have not been many studies proving its efficacy, particularly walking. I was reading a book that was recommended to my sister by her doctor, "Strong Women Strong Bones" by Miriam E. Nelson. In it, she speaks of a test group of walkers vs non-walkers and there was no improvement in bone strength with the walkers which is very surprising I think. Of course walking is very good for other things too so even if it is little help for osteoporosis it does help with overall health.
I will listen to the doctor and then do some additional research. My PCP knows that I do not easily take recommendations for drugs. He is not a big advocate of many drugs but right now he is trying to get me to take BP medication. I have given in on the cholesterol medication because my endocrinologist pushed me on that and I trust him very much. I will be seeing a different endocrinologist for my osteoporosis probably and unfortunately, that appointment is not until January. My PCP does have me on vitamin D and I also take calcium that has a little vitamin D in it.
@sue225 It's so ironic that being petite is more of a risk! I was much heavier and all of that extra weight actually helps to keep bones strong. Now I am not very overweight at all so that is an added risk along with taking prednisone, and also taking omeprazole. Omeprazole can cause the calcium to not be as easily absorbed I have read.
JK