I am in the process of deciding when to stop treatment. Stage IV rectal cancer (I have posts elsewhere on this site if anyone is interested in more detail), currently stable since June. I feel just fine apart from neuropathy in both feet which is numbness not pain, but will likely not resolve. I have just reached a point where my mental health is beginning to suffer. I'm tired of being tied down to appointments and infusions every two weeks with chemo ball for 46 hours. I was told that this schedule will be for the rest of my life -- there is no break, there is no cure, and there are no surgical options for me. I had a second opinion at Moffitt earlier this year, and I'm in the process of getting another opinion from MD Anderson in Houston. If they offer no other treatment beyond what I'm currently doing, it will make my decision much easier.
I'm 58, no kids, limited support network, no debt, both parents have passed, and I have just a few family members who live in other states. I have been traveling to bucket list places, but it seems very limited because I need to be back home for treatments every two weeks. I am currently fostering kittens, and I want to keep them, but feel I cannot give them much time with me. It wouldn't be fair to them to have to adjust to another home in a few years. It's easier to find homes when they are still small and cute.
When I decide to stop treatment, I will focus on traveling, going to musicals/ballets/symphony concerts, wonderful restaurants for great food (I'm fortunate that money is not an issue for me), good quality sleep every night which is challenging on those nights I'm wearing a chemo ball for 2 nights every two weeks, spending time with family/friends in other states, yard work/plants inside and out, going through my things to sell/toss so it is less for my beneficiary to do (which I think will be my brother but I'm not sure), getting paperwork in order to make it easier when the time comes, watching TV/movies/reading books I haven't read yet when I'm home relaxing, and allowing myself time to reflect and make peace with my decision. I do attend church and I do pray, so some of my peace comes from God and the promise of Heaven. I hope this response is helpful to you!
@vcsongradi, you sound at peace with your decision and looking to live life to its fullest. My dad with colorectal cancer made a similar choice and never regretted it. It was a special time for him and my mom.
In the course of getting paperwork in order, have you considered looking into a residential hospice facility near you? I can't say enough good about planning for hospice care to help prepare for the best possible exit (stage left) 🙂 Hospice can be equally comforting for family and friends, supporting them and they focus on supporting you.