Prolia treatment for osteoporosis: What is your experience?

I have heard the same from a Rheumatologist from Canada,” don’t go on Prolia” ....but what’s a person to do with severe osteoporosis,???? Can a PC ever prescribe Forteo or does it have to be prescribed from a rheumatologist? I can’t get in to see one until May of next year! I have had multiple compression fractures T6,7and 8 and also a fractured rib ,wore a back brace/vest for awhile ,saw a PA who said she has seen better results with Prolia vs Forteo! This all happened in early April of this year,still having pain all over after being put back on Prolia,I had been on Prolia for 2 years and still had the compression fractures,I I never fell at all! I did have a full body scan on July 1st, that is what showed my severe osteoporosis. I am 69 yrs. old and used to be very active ,now emptying my dishwasher is Painful!

I have heard the same from a Rheumatologist from Canada,” don’t go on Prolia” ....but what’s a person to do with severe osteoporosis,???? Can a PC ever prescribe Forteo or does it have to be prescribed from a rheumatologist? I can’t get in to see one until May of next year! I have had multiple compression fractures T6,7and 8 and also a fractured rib ,wore a back brace/vest for awhile ,saw a PA who said she has seen better results with Prolia vs Forteo! This all happened in early April of this year,still having pain all over after being put back on Prolia,I had been on Prolia for 2 years and still had the compression fractures,I I never fell at all! I did have a full body scan on July 1st, that is what showed my severe osteoporosis. I am 69 yrs. old and used to be very active ,now emptying my dishwasher is Painful!

PS. Also had to have a tooth pulled that had cracked...was given antibiotic deep clean cleansing! Lots of bone Loss!!!!😞

@nancyrod69 I have had loads of dental problems over the years(prior to prolia). Decaying teeth cause bone loss.

@sue225 do decaying teeth cause bone loss, or does bone loss cause decaying teeth? I have read that bone loss leads to losing teeth due to periodontal problems.
https://www.bones.nih.gov/health-info/bone/bone-health/oral-health/oral-health-and-bone-disease
JK

I was on Bonviva for 2 years and it didn't work. I started Prolia in January. So far the only side effects I notice are the same I had with Bonviva... stiffness in my hips and knees when I sit for a long time or first thing in the morning. I am 53 and have just started testing to see if they can discover a cause for my Osteoporosis.

In my case, I lost bone from cracked roots (old root canals)in molars for example. Infection develops over time. The infection eats away at the bone. Sometimes this infection does not show up on an xray. So, by the time the tooth is extracted there is significant bone loss. If you then choose to go the implant route a bone graft is required (artificial bone used). All of my many unfortunate dental troubles were long before Prolia.

@sue225 so the decaying teeth just caused bone loss in your mouth, now I understand. Were you able to get implants?
JK

I am tentative about this drug also. I have hashimoto's disease, gastroparesis, kidney disease that is not active, and osteoporosis. My last DEXA scan was -4.5 at the hip and -2.5 at the spine. After a year and a half of resistance training twice a week for an hour each with a Wellness Coach and by a physical therapist, my spine is now not losing any bone but my hip has lost 5% in 2 years. I have been taking 2000 Vit D3, adequate calcium since I have calcification in my arteries (I am 68 years old), along with Vit K2, and magnesium and a multiple vitamin. My hesitation is that 3 totally different drugs have sent me to cardiac care for 5 days or more with blood pressure over 200. Acthar, Livalo (a cholesterol med) and Tacrolimus. At all times I had just visited my nephrologist & my kidneys were fine in that I was not dumping protein. I have always had excellent creatinine clearance... just protein loss. I am not able to take any of the Fosamax or pills such as that. They make me dump more protein. Unless someone can steer me to someone that can do some genetic counseling to see why my body is not metabolizing drugs like everyone else's, I am not inclined to take Prolia. I don't know where to turn for more help. My endocrinologist just keeps pushing Prolia. But at least I have built muscle to support these old bones until they just break. Any advice would be helpful.

I won't take Prolia due to it stating that stopping the injections can cause spinal fractures. My pharmacist confirmed this with the manufacturer, although the endocrinologist believes otherwise. . The other problem is that having low bone density doesn't correlate to bone strength. I have osteoporosis, but have never broken a bone, even when falling. My friend doesn't have osteoporosis, but has broken bones when falling. Unfortunately, there is not enough known about this disease and we are all guinea pigs. The medical profession is constantly changing their minds about treatments that were once mainstream. That is not necessarily a bad thing; it just means one should do some research and not blindly trust their doctor.