Anyone else with pulmonary hypertension and mac

Posted by Elaine @laneyk, 12 hours ago

I had Mac 10 years with successful treatment ending in 2016. In December 2023 I was diagnosed with mod to severe pulmonary hypertension. I have not been able to take many of the medicines and now I have a recurrence of Mac. I’m a frail 84 yo woman. I have been losing weight constantly. I was just in the hospital where the Mac was discovered. Taking the meds for Mac continued to make me lose weight 10 years ago. I have lost weight steadily with the PH and now I’m going to take the three mac drugs. I’m wondering how I’m going to handle more drugs. I’m 100 lbs now. With Mac first time I couldn’t eat much. Does anyone have suggestions on diet with both diseases? Nothing tastes good.

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