← Return to My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Discussion
Comment receiving replies
Profile picture for robinll @robinll

I have PV and was getting phlebotomies at least once, sometimes twice a month even though I was also taking hydroxy. but then I found a secret of keeping my counts low....I drink as much liquid as possible before the blood test and the drink that works best is Tonic. Yes, quinine thins your blood. I prefer Fever Tree because it does not contain preservatives. Is this cheating? It was recommended by the phlebotomist.

Jump to this post


Replies to "I have PV and was getting phlebotomies at least once, sometimes twice a month even though..."

@robinll If her hematocrit is still over 45 she’s only cheating her own health. That’s means her numbers will be even higher at her next labs and she could risk throwing a clot. Be careful.

@robinll Have you shared this “trick” with your hematologist and, if so, what do they think about it?