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The Caregivers' Guilt Dumpster - Open for business

Caregivers | Last Active: 2 days ago | Replies (195)

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Hi Everyone, I'm so happy I've found this DUMP page--(and many others in the Mayo clinic group). My issue is also impatience with my beloved husband's inabilities, "blowing it," "losing my cool, " and so forth. Sometimes I'm scared that "the only thing I have to look forward to" will be my husband's death ... his MCI will only get worse (it's currently undiagnosed; he's dealing with a different diagnosis of prostate cancer). It was scary even writing that sentence. I'm trying to get to a place where I concentrate on enjoying all that is enjoyable in our lives right now and accept that for some unspecified amount of time, this IS and will be my life, caring for him, cooking, cleaning, helping him with his bills and money matters; driving him if he needs to go anywhere. I'm trying to RELAX into this, just accept it. There is much that is beautiful about our life together, he has been the love of my life. I just need to adjust my focus ... but sometimes, yes, I feel I just can't do any more than I'm doing. And know that going forward, more is going to be needed. This forum is already a crutch actually, a place where it's safe to vent on all the unspeakable things I can barely face ... Thanks to all of you for sharing.

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Replies to "Hi Everyone, I'm so happy I've found this DUMP page--(and many others in the Mayo clinic..."

@workwoman Welcome to Mayo Clinic Connect! Some of the other discussions will show you the positive times people have had. Thus, this dumpster page was started: keep the good and bad separated. I’m glad you have joined but, hopefully not just for the bad stuff!

@workwoman I'm sorry to welcome you to this world, but we're here for you and each other.
I'm amazed to find so many parallels in your situation as me with my husband, his progression, my feelings (up, down, positive, negative, patient, off the charts frustration and finally so much fear and sadness for our future and our relationship, or what's left of it. It's very hard to swallow, I get it!
Peace to you.

I share what you described. One thing that seems to be helpful to me is saying to myself “it’s just life”.
For some reason reiterating that phrase to myself helps me focus when my world seems overwhelming.
I’m always open for other healthy ways to handle feeling overwhelmed too.
I wish you well and keep up the good work !

@workwoman This could have been written by me.