← Return to Prolia treatment for osteoporosis: What is your experience?

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@susan30

When I was diagnosed with osteoporosis 9 months ago , my primary care dr had his nurse call to tell me.
In 1 quick sentence she sd I had Osteoporosis & 'dr said take either Prolia or Reclast'.
I didnt know what those were & she didnt explain but said there was 'no rush' to decide on which one I wanted to do.
Didn't even tell me to come in & talk with the dr so he could tell me about Prolia or Reclast and really he certainly
should hv referred me on if he couldn't explain to me what type of meds they were.

I did my own Google search & scared myself reading all the side effects of both.
After 3 months of worrying I choose Prolia injection after joining MayoClinic Connect online & reading the pros & cons.
Then after I got the Prolia injection, I read that osteoporosis should be treated by an Endocrinologist so I went to my Primary Care dr & he said 'absolutely no' to referring me on to an Endo but he would refer me to a Rheumatologist which took 3 months to get an appt with. So a lot of WASTED time trying to doctor myself & find the path to who could treat me for osteoporosis.
I was very irritated by that time when I finally got to see the Rheumatologist a 2 1/2 hr drive to another city.

Rheumatologist sent me for full blood work after my appt with him to check Vit D & Calcium levels which came out OK.
His nurse called me within the week to tell me my D & Calicum levels were fine. Nurse didnt tell me my numbers so I went to medical records & got a copy of my full panel.
My Vit D = 70 (30-100 ref range) My Calcium = 9.2 (8.6-10.3 ref range)

Rheumatologist asked why I was on Prolia & said he would have put me on the Reclast IV once a year & said it was cheaper than the 1450 every 6 months for Prolia. I dont know what he was basing his decision on regarding liking Reclast rather than Prolia .
It can't be just because its much cheaper.
He talked way too fast & didnt want to go into the WHY of it but went on to tell me how osteoporosis is a death knell & if I fall & break a hip 60% die within the year.
When I came out of that appt I had a lot of anxiety wondering about his unexplained concern that I chose Prolia over Reclast
and I'm just about due for my 2nd Prolia.
I do read all the comments on this Mayo Connect site noting how others are dealing with their osteoporosis.
Very challenging time of our lives to stay as healthy as we can.

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Replies to "When I was diagnosed with osteoporosis 9 months ago , my primary care dr had his..."

@susan30 Were you told why a rheumatologist rather than an endocrinologist? My PCP said a rheumatologist and that was what I was planning to do but in further research on the doctors at MGH where I go I found an endo who seems to specialize in osteoporosis. So now, I’m totally confused.
If anyone knows the advantage of endo vs rheumatologist, I would be very interested in knowing.
JK

I was given Prolia and Letrozole as a cancer prevention after having had breast cancer a second time. After 3 years I had a severe jawbone infection and still taking strong antibiotics to recover. I have found out that the doctor didn’t even check my density and that I was normal and didn’t even need it. Very serious drug that I will never take again. This has been now 6 months and still don’t know where this will end. Yes, I have changed oncologist!