@lisanell
You obviously can't tolerate the hydroxyurea. This is true for many patients but other meds are available.
Join the Healthunlocked site. Lots of discussion on autoimmune reaction to HU. Doctors should do research and not just tell patients that they never heard of a medication side effect. I'm sorry that happened to you but this is too serious to let it go on without the advice of an MPN specialist. They will consult over the phone if not in driving distance. Don't just suffer through it.