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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)Comment receiving replies
I am not taking any drugs. They do not agree with me and I do not want to continue to make my bones more brittle with the Osteoclast drugs. I am eating lots of kale, almonds, grains, yogurt also taking vitamin D, & calcium ...all prescribed by a doctor and a nutritionist. I am also tested for my thyroid TSH. I exercise at least 5 days a week. My endocrinologist put me on Prolia and took me off Prolia after two injections and the discovery of a lung nodule. I cannot do Fosomax as it makes my joints hurt. I know hundreds of women who have had jaw and dental issues with Fosomax type drugs. My dentist gave me a report that was shocking regarding several Fosomax studies and did not recommend Fosomax type drugs.
I see a Sports Medicine doctor and a PT in Sports Medicine and I feel that I am improving. My Sports Medicine doctor was very impressed with my impact fractures recovery time. i am ridding a bicycle 12 miles a day.
I am never doing Prolia or different drugs similar to this again. It was explained to me that bones build up every day and also tear down as a natural bone building process. Osteoclast drugs only build bones up stopping the normal tear down process of our bodies building strong bones. The end result is bones continue to become more and more brittle. It is also explained in both a October 2018 European Medical Journal reported on line and also in a Canadian report by University of British Columbia. As I understand it, there are black warning labels on Prolia drugs in both Canada and Europe. My pulmonologist ordered a CT scan and I have a lung nodule, then read me a report about Prolia that said Prolia can in fact cause lung nodules. For me the risk certainly out weight the benefits.
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I no longer take any osteoporosis drugs. I took Fosomax and Fosomax D off and on for over five years. I had aching and cramps in my legs that eventually extended up into my groin. The pain would sometimes be so severe that I could not lie in bed and was walking the floor at night to try and reduce the cramping. With continuing bad reports about the osteoporosis drugs I made the decision to completely go off them. I eat a healthy diet, take D3 daily, exercise at least five times a week, eat yogurt daily along with a probiotic, and feel 100% better! It is soon six years since I took osteoporosis drugs, I refuse Dexa scans and I have absolutely no intention of going back on any of these drugs until safer ones become available. When research and drug companies come up with a proven medication that will not harm me or make me feel ill, I will reconsider. I am not advising anyone else on what they should do, but for me, this is the choice I've made. I try to keep up on research being conducted and the reports about the drugs that are or will be offered on the market, and hope that eventually effective and safe osteoporosis medications will be available.