Hi @pefishback Both Mayo Clinic and MD Anderson are top tier cancer centers. From my own experience with Mayo Rochester, their hematology department is 2nd to none. I’m biased, of course, but if you’re in Michigan, Mayo Rochester might be an advantage for you with being closer than Texas.
If you’d like to make an appointment at Mayo, here is a link to get you started: http://mayocl.in/1mtmR63. You can go to their homepage and click the links to initiate a request for an appointment.
Last we spoke you had completed your AML treatments, in remission but with the potential for a post treatment plan with V& V. That treatment plan has been quite successful as mentioned by @sonieaml in her recent reply to you and also from @lindagi and others in this discussion:
AML, age 78, taking Decetabine/ Venetoclax, no transplant
https://connect.mayoclinic.org/discussion/aml-age-78-taking-decetabine-venetoclax-no-transplant/
If you do choose Mayo Rochester, there are many hotels connected directly to the Clinic via their wonderful skywalk/subway tunnel system. There is a massive expansion/construction project going on in Rochester right now so parking is at a premium for patients! So getting a hotel nearby, directly connected is great…you don’t have to look for parking! Though many hotels which are not connected often have shuttle services.
Has your health changed recently with the potential for relapse?
Hi @loribmt — thank you so much for your response and for remembering my situation. I completed induction last April and four rounds of consolidation chemo over the summer. Currently I’m in morphological remission and feel great—back to daily endurance and strength training.
However, I am MRD positive (as assessed using flow cytometry test). Also, blood draws in September and this month show my platelet level has decreased slightly below the normal range cutoff.
I’m having another blood draw next week, this time with peripheral flow cytometry. In addition, I’m scheduled to visit Mayo on 11/21 (thanks for the info!) and will be visiting the University of Michigan-Ann Arbor on 11/5 to discuss the MRD results themselves with a flow cytometry expert.
We’re really pleased to have some appointments on the calendar so we can see where things might go from here.
Thanks again!