Hello @sanjb,
I have a similar story. I was diagnosed with ET in 2002 at age 49. I am now 71 yo. I have been on Hydrea since age 60. Still doing well. I get my blood drawn monthly and see the oncologist hematologist every 3-4 months. I am a triple negative but my oncologist says my platelets and how I respond to hydrea seems to indicate I have similarities to patients with CALR. Good luck to everyone. I think finding a good hematologist who specializes in ET/PV is key to survivability of this rare cancer. Also Baby aspirin has helped me not have any blood clots so far.