Connect
← Return to Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?
Discussion
Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?
Blood Cancers & Disorders | Last Active: Nov 1 7:29pm | Replies (36)Comment receiving replies
Good morning, Anna. When I read your message, I have to tell you, I got a little teary-eyed. Your reason is my reason for wanting to live a long life! I pray every day for that! Sometimes I get frightened and Through prayer, Jesus give me peace. My granddaughters are 14 and 12 and give me such joy. So fortunate they’re only 10 minutes away. Let’s stay in touch. It was nice to see your message today. Sometimes I feel so alone! I love your name—my sister’s name is Anne. Hope you have a good day. Susan
Replies to "Good morning, Anna. When I read your message, I have to tell you, I got a..."
Connect
@rivieramaya2009
One of my very long time friends is named Susan !
Your grand daughters are close to age of my twin grand sons ! My husband and I have spent lots of time caring for them since they were born!!I live 50 miles away but I stay over there for couple of days a week
! I am now on my fourth day of my lower dose of OJJAARA! I feel pretty good!
I was able to get to church on Sunday !!I missed previous Sunday because of being sick ! Susan ! I am wondering are you getting any treatment?? All of my blood numbers were below minimum below the range !
My HEMOGLOBIN WAS 96
Previously I took JAKAFI ?
How are your numbers?
Text any time! As soon as I find your POST ! I will respond , my fear is that I will not be able to take care of myself! Generally speaking, I think people do not understand what we are dealing with and how it feels to be in our bodies!
I am always here for you ! Many other people on this site understand and empathize!
I try to read about my illness and treatments available! I read other cancer centers also . Stay strong 💪 keep speaking to GOD