Answering your questions in numerical order.
1. Declined BMT
2.Never ran a fever after induction therapy.
3.Yes I required both blood platelet and potassium transfusions.
4. I believe there were 4 transfusions in total over the first 3 months after induction therapy.
5. I have achieved normal ANC, Platelet, Hemoglobin numbers for the first time since diagnosis in March 2024. Treatment is Dacogen and Ventclextca . I am working 2 days a week and my July 2025 MRD didn’t find any of my mutations (FLT3, NPM1). I get 1 chemo treatment in my port every 5 weeks and take chemo pills 2 days (chemo port day and the next day).
6. I have gone from 90% blasts when diagnosed to no evidence of disease with latest MRD test. I will be tested again in November.
I wish everyone dealing with AML would have the outcome I am currently experiencing. My team has worked using my weekly blood draws to get my treatment from 5 consecutive days of port Chemo and 14 days of chemo pills down to 1 day port chemo and 2 days chemo pills. I feel really great overall!