Prolia treatment for osteoporosis: What is your experience?

Is it ok to stay on a med if you are getting throat swelling? It really sounds like a not minor allergic reaction. Your doctor is aware of this and okay with it?

Sounds like a feasible plan...you have all gears going for you - Stay the course. Sounds like me!

I have gerd, and ibs and celiac disease that no one even suggested bisphosphanates for me. Go directly to Prolia. (Also instead of statins, evoculomab injections/repatha). Yes, for people like me these monoclonal antibodies are the way to go.

I spent the last six months recovering from three minor stress fractures in my foot (no fractures prior to this) and I have been on Prolia (off and on) for a few years, successfully. However, due to the lack of healing, my doctor is considering Tymlos because of its cost and my inability to tolerate Forteo (many years ago). Losing one’s independence for six months was very difficult and challenging; both physically and emotionally. As patients, I feel it’s really to our benefit to think about, research, and consider the pros and cons. I am willing to have a future, if possible, that provides me a level of independence. Thanks for listening everyone and good luck on all your journeys ❤️

@sue225 If your throat is swelling you know what happens to it if it goes shut? Suffocation Find something else talk to your Dr.

I am not the one with the swollen throat. I was responding to someone who is reacting badly to Reclast.

@sue225 So sorry read it wrong

🙂

Very true.

Hello to all. I was diagnosed with stage 1 grade 1 er positive breast cancer in 2105. In addition to radiation I was prescribed anastrolzole and then fosamax to offset the bone density risk from the anastrozle as I had osteoporosis in hip. After 6 months on fosamax with some digestive issues my doctor switched me to prolia injections and I agreed based on the understanding that the prolia would leave my system permanently when I ceased it. I fully intended to cease it within several years. After 3 years on prolia and and anastozole I had such Terrible joint pain . In back and hip I could hardly walk. After stopping the anastozole I saw some improvement in joint pain . But still was in pain. That is when I realized the prolia must be part of the problem. At that point I decided to cease all these drugs but discovered the research on prolia discontinuation spinal fractures and consulted an endocrinologist. I am now moving from Prolia back to fosamax for 2 years to avoid the risk of spinal fractures due to discontinuation..... assuming I can tolerate the side effects of fosamax. . I am doing this only because I am fearful of the multiple spinal fracture risk which is permanently disabling as best I can tell. Anyone considering prolia must read the research on the multiple spinal fractures upon discontinuation. . Just google prolia discontinuation and you will find many research articles and case summaries. If you take prolia there is no clear exit strategy. I am now very cautious about any of these drugs. Undoubtedly they are very useful for patients who have severe risk of bone breaks at outset. However I am 69 have never broken a bone other then high school basketball finger break and my parents lived to 91 mother and 95 father still living neither of whom had ever broken a bone. I do not believe my fracture risk justifies these kinds of drugs nor the risks of the adverse effects. Yet now I am at risk due to the drug......... please get well informed before you consider this drug and be SURE it is right for you.