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Parkinson hallucinations

Parkinson's Disease | Last Active: 2 days ago | Replies (6)

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @monmk and welcome to the PD support group on Mayo Clinic Connect. I'm sure that these hallucinations must be unsettling for you. I see that @barryl and @estutweh have already shared their experiences with you.

There is some great information. Here is a link to an article about PD hallucinations on the Davis Phinney website: https://davisphinneyfoundation.org/blog/how-to-bring-light-to-the-darker-side-of-parkinsons-a-primer-on-hallucinations-and-delusions-and-how-to-manage-them/

Here is a quote from this article: "Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations and/or delusions. Approximately 50% of all people living with Parkinson’s will experience some form of hallucinations or delusions, and the longer one lives with Parkinson’s, the greater the likelihood they’ll experience them."

This is described as a non-motor symptom of PD and is a result of having PD for an extended period of time. As this is your first post, please share, as you are comfortable doing so, a little about your history with PD. For example, how long ago were you diagnosed? Are hallucinations a new symptom for you?

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Replies to "Hello @monmk and welcome to the PD support group on Mayo Clinic Connect. I'm sure that..."

@hopeful33250
72 year old male diagnosed 3 years ago but feel PD was present many years before diagnosis. Full hallucinations occurred when C/L was increased. Prior to that I experienced delusions after first starting C/L. Have been taking quetiapine for last several months and have recently included Nuplazid. Neither drug has helped rid me of the hallucinations as of yet. Has anyone had any success elimination hallucinations or is this something I will need to live with?