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Veruska (@veriska)

Prolia treatment for osteoporosis

Bones, Joints & Muscles | Last Active: Sep 12, 2021 | Replies (823)

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I agree that no one knows the long-term effects of these drugs. I stopped Prolia after three injections due to a number of side effects, and regret not doing enough research before starting. My internist had been telling me for ten years that I HAD to do something and that the choices were Prolia and Forteo, so I rather blindly agreed to Prolia. I was not told about the potential for rebound fractures when stopping, hence, the need to stay on it forever or switch to another drug. I had extreme fatigue, a persistent cough with mucous, episodes of vertigo, acid reflux, joint pain, itchy skin, and hair loss, with most setting in after the third injection. I saw specialists to rule out other causes for those conditions before deciding to stop Prolia. All of those conditions have improved since stopping. If I were fracturing, I would be more willing to endure side effects, but I am not willing to endure a dramatic loss of quality of life otherwise. And I am now taking my chances that I will be one who suffers rebound fracturing, because I didn't go on another drug. I feel that I am worse off than when I started. I am also one of those who was prescribed Fosamax in the mid-90s when it first came out as a preventative measure, and I didn't even have osteoporosis. It was prescribed to me year after year for nearly 15 years. I just recently learned through my extensive research on these drugs that Fosamax taken for that long can permanently alter the structure of the bones, and is now prescribed for only a very short period of time. All of that said, I know that there are people who take Prolia with no side effects, and that it can be a godsend to someone who is fracturing.

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Replies to "I agree that no one knows the long-term effects of these drugs. I stopped Prolia after..."

I am about to get my third injection! Oh oh. I refused medication year after year, bone density test after bone density test until there was a 19% drop in the b.d. of my spine in an 18 month period. At the rate I was going, I would soon be spineless.
I did the research. All the drugs terrify me. But, time was no longer on my side. For me, the thought of losing my independence, of having to spend life in a wheel chair and all that entails scares me much more. My quality of life has always been somewhat compromised by gastrointestinal issues, chronic pain issues due to lots of osteoarthritis so I didnt want a fracture as well.
I remember the endocrinologist saying to me on one visit, " I've seen patients on the other side" (meaning those who chose not to take meds). And she referred to a patient who was still in a wheel chair two years after a hip fracture.
I dont like some of what I read in the studies either but
in my case, at this stage in my life, I felt Prolia was the best option.

Hello Sister: You are singing my song. I am on your team. Bravo for your speaking up. Thank you for sharing.

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