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What do people do for chronic neuropathic pain?

Neuropathy | Last Active: Oct 20, 2025 | Replies (23)

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Profile picture for calmmylife57 @calmmylife57

Namaste @dancer7000
I've had chronic neurophatic pain for 13 years, I've tried every on and off book medications my doctors could prescribe, got addicted to Tramadol, it had no effect just turned me into a zombie and I had to wean myself off, it was horrible. I've had root nerve injections, refused lidocaine, I understand the side affects opioids have and their affects are only temporary. I take pregabalin and co-codamol, so I have massages, cupping, acupuncture, go for walks even when my pain is bad, hydro therapy, use a TENS machine, do Yin yoga, Qigong you name it I'll practice it. Nutritious foods, I take vitamin D with vitamin K, B12 both oral sprays, vitamin C and zinc now autumn is here, as I'm at risk of cold, flu pneumonia and covid. My blood works are good, I weigh 9 stone, I exercise especially my core muscles to strengthen and support my back muscles as I have lumbosacral spondylosis with radiculopathy, cervical radiculopathy and fibromyalgia from a car crash in January 2013.

I have a cat, she is a great comfort, I'll have a shot of Havana Club 7, once a month thats my treat! I put some music on and dance around the living room, or take some co-codamol and go dancing in a club with a group of friends with my walking aid. Like I did this Friday which resulted in my legs going into spasm and severe pain in my lower back, hips and pelvis but it was worth it for that momentary release of happy endorphins. Being out with friends a few years younger than me, it’s great being out with people who just want to dance and enjoy themselves is a great vibe and buzz!

It's horrible having to live with this pain, but I'm not letting it consume me yet! I'm 58 soon to turn 59 in a few weeks and I'm going to live my life as much as I can. Oh I'll tell you what helped me a very good therapist, who listened, supported me to come up with solutions of how I manage my symptoms and pain. Some days are more challenging than others but pain wise most days are an 8-10 and I'm still working, still living my life and socialising because some of my friends never made in to my age so I'm not only living for myself but for them. Also, I have two beautiful grandchildren a granddaughter is 8 years and my grandson is 2.5 years and I want to be around and mobile for as long as possible.

I've had adaptions made me my house, I spoke to my doctor and got a referral for support at home, as I see support as tools so I can live life- I guess my childhood traumas gave me the resilience and courage I have to day, because when you have nothing to loose the only thing is to live! Also you fear nothing and when you get to this age you don't give a damn about what anyone else thinks about you, I'm too busy protecting my energy and my peace. I live in England, and our healthcare is free, I do pay privately for the massage, cupping , and therapist etc and the carer I will get will be at no cost.
When the pain overwhelms my. body shuts down and I sleep, I take Epsom salts baths, use essential oils and rest, pace myself.There is no cure for neurophatic pain so please don’t waste your money on scam lotions or potions.

Talk with your doctor and healthcare professionals and see what they advice that is affordable to you. Find whatever works for you that is proven and tested, to ease your pain in that moment, take care of yourself.

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Replies to "Namaste @dancer7000 I've had chronic neurophatic pain for 13 years, I've tried every on and off..."

@calmmylife You are awesome. All I know about nerve pain is it is caused by its protecting insulation , a fat called MYELIN. Google talks about different causes of DEMYELINATION. Have been there with trigeminal neuralgia.
Good luck.
James NZ
Good luck