Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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sue225 | @sue225 | May 7, 2019

In reply to @user_chf56161a "I had to wait a year for bone density scan." + (show)

Are you in Canada or the U.S.? Why the wait? After starting Prolia, it is normal to wait one year. Takes that long to know if the drug is effective. Or is the wait for another reason?

ritafarmer | @ritafarmer | May 7, 2019

In reply to @hopeful33250 "Hello @hilsy, I appreciate your sharing about the new drug, Evenity. All of us with bone-thinning..." + (show)

I also read some of this. I think that the increased risk of heart attack and stroke means that this will be reserved for a select number of patients. I was able to use Forteo (the one where you give yourself a daily injection using a pen). It can only be used for two years. It is the drug that gave me the most dramatic increase in bone density.

sue225 | @sue225 | May 7, 2019

In reply to @ritafarmer "I also read some of this. I think that the increased risk of heart attack and..." + (show)

My endocrinologist 's advice was to prescribe Forteo for the allotted time to be then followed by Prolia. I chose to just start with Prolia (understanding that the increase in bone density would not be as rapid). The "side effect" of osteosarcoma worried me as there is so much cancer in my family. (grandparents, mother, sister, brother, first cousins). Also, I have that ventricular tachycardia arrythmia and I had read that some patients experienced a racing heart after the injection. So, that's why for me, (and who knows if it was the right choice) I opted for Prolia. Now I'll shortly discover if there has been any improvement.
This new biologic Evenity seems to have both the bone-building feature of Forteo and the slowing of the breakdown of bone properties of Prolia. (Notice it has a warning related to cardiovascular issues). There never is the perfect
no side effect drug! (On the otherhand the long term side effects of a broken hip are horrible).

sue225 | @sue225 | May 15, 2019

Positive Prolia results! Bone Density test revealed 11.4% improvement in the spine and 6.5% in the hip. My endocrinologist was very pleased with the results. If only I had taken her advice and started Prolia four years ago. I see things differently now. For those who may be worrying about the side effects of the drug, I now believe the side effects from a fractured hip would be ever so much worse. Calling the nurse in the osteoporosis clinic tomorrow to book my third injection. (And so far, no side effects).

ritafarmer | @ritafarmer | May 15, 2019

In reply to @sue225 "Positive Prolia results! Bone Density test revealed 11.4% improvement in the spine and 6.5% in the..." + (show)

I agree! My mother and her four siblings all had broken hips. I do NOT want to join them.

TERESA LOGAN | @quiteachiver75 | May 16, 2019

In reply to @sue225 "Positive Prolia results! Bone Density test revealed 11.4% improvement in the spine and 6.5% in the..." + (show)

Congratulations wonderful news I am having PROLIA injections also. Still to have my Bone Density hope I get good results like you

TERESA LOGAN | @quiteachiver75 | May 16, 2019

YES I HAVE HAD 3 INJECTIONS OF PROLIA AND HAD NO SIDE EFFECTS I AM HAPPY WITH THIS TREATMENT FOR OSTEOPOROSIS GOOD LUCK

sue225 | @sue225 | May 16, 2019

In reply to @quiteachiver75 "Congratulations wonderful news I am having PROLIA injections also. Still to have my Bone Density hope..." + (show)

My doctor has also recommended resistance and balance exercises along with walking. Now its up to me!

laylabug | @laylabug | May 16, 2019

In reply to @sue225 "My doctor has also recommended resistance and balance exercises along with walking. Now its up to..." + (show)

Me too!!

sue225 | @sue225 | May 16, 2019

In reply to @laylabug "Me too!!" + (show)

Exercise is not my thing! Just watched the news segment on Mick Jagger who at 75 is bopping around 6 weeks after heart valve surgery...oh, to be like that. Hoping to be inspired.