1. < Polymyalgia Rheumatica (PMR)
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Kevzara & Methotrexate

Posted by kass8174 @kass8174, Oct 17 7:53pm

Hi folks I have been on Kevzara since March and after 12 shots I started feeling better (not ever 100%) but better was short lived so Md suggested I try Methotrexate Sept 15 and I see no difference maybe worse. I read someone got a covid shot snd had a relapse. I just got both flu and covid shots two weeks apart. Wondering if it affected me??! I am able to get out of bed and get dressed so I guess I shouldn’t bellyache but I am 2years into this and tired of it!! Thanks for listening❤️

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Profile picture for tweetypie13
tweetypie13 | @tweetypie13 | Oct 18 8:44am

Try OTC Tylenol for arthritis as a bandaid

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rashida | @rashida | Oct 18 8:50am

@kass8174 you need to be on Methotrexate a few weeks to feel its effect. Sometimes as long as four months.

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ronludington | @ronludington | Oct 18 11:12am

Any type shot, flu, covid, shingles, etc... can cause a flare. I personally refuse all shots of that type now. But it can cause the autoimmune system to revolt. I was hoping that wasn't the case when on kevzara, just took my 4th shot.

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farnhamlaf1 | @farnhamlaf1 | Oct 18 11:12am

I was on Methotrexate for 14 weeks then went on a cruise a forget it. So I have been off it for 3 weeks. Prednisone is a 5mgs
I don’t notice a big difference without it

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tweetypie13 | @tweetypie13 | Oct 18 3:57pm
In reply to @ronludington "Any type shot, flu, covid, shingles, etc... can cause a flare. I personally refuse all shots..." + (show)
Profile picture for ronludington @ronludington

Any type shot, flu, covid, shingles, etc... can cause a flare. I personally refuse all shots of that type now. But it can cause the autoimmune system to revolt. I was hoping that wasn't the case when on kevzara, just took my 4th shot.

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@ronludington
I have gotten 2 Covid shots 3 months apart and had no side effects while on Kevzara….I’m at 30weeks Kevzara

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2 replies
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ronludington | @ronludington | Oct 18 5:22pm
In reply to @tweetypie13 "@ronludington I have gotten 2 Covid shots 3 months apart and had no side effects while..." + (show)
Profile picture for tweetypie13 @tweetypie13

@ronludington
I have gotten 2 Covid shots 3 months apart and had no side effects while on Kevzara….I’m at 30weeks Kevzara

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@tweetypie13 that's great that it didn't bother you ! Thanks ! That's good information.

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caroljeand | @caroljeand | Oct 19 1:06pm
In reply to @ronludington "Any type shot, flu, covid, shingles, etc... can cause a flare. I personally refuse all shots..." + (show)
Profile picture for ronludington @ronludington

Any type shot, flu, covid, shingles, etc... can cause a flare. I personally refuse all shots of that type now. But it can cause the autoimmune system to revolt. I was hoping that wasn't the case when on kevzara, just took my 4th shot.

Jump to this post

@ronludington
I was told I should get all updated vaccines since kevzara would probably lower my immune system and be vulnerable to infections.

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marmille | @marmille | Oct 19 1:12pm
In reply to @tweetypie13 "@ronludington I have gotten 2 Covid shots 3 months apart and had no side effects while..." + (show)
Profile picture for tweetypie13 @tweetypie13

@ronludington
I have gotten 2 Covid shots 3 months apart and had no side effects while on Kevzara….I’m at 30weeks Kevzara

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@tweetypie13 how has Kevzara worked for you? I have not been able to get below 2mg of prednisone and still have shoulder pain on 2mg.

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1 reply
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tweetypie13 | @tweetypie13 | Oct 19 1:27pm
In reply to @marmille "@tweetypie13 how has Kevzara worked for you? I have not been able to get below 2mg..." + (show)
Profile picture for marmille @marmille

@tweetypie13 how has Kevzara worked for you? I have not been able to get below 2mg of prednisone and still have shoulder pain on 2mg.

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@marmille
Kevzara has been just fine. Was able to taper from 8mg pred to zero successfully without any speed bumps in 15 wks (not shots) on Kevzara when I stopped Prednisone. I’m now at 31 wks Kevzara. Any speed bumps since stopping prednisone were weather related and I take OTC Tylenol for Arthritis.

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dvorahberlin | @dvorahberlin | Oct 19 3:20pm

Hi, I live in Germany and have an excellent rheumatologist looking after me. I just started on MTX and have been tapering prednisone and are now on 10 mg going onto 9 mg next week. He told me not to get vaccinated while I am on methotrexate. You can do some online research and will find explanations for that.
Hope you feel better soon

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